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. 2023 Oct;61(10):536-540.
doi: 10.1038/s41393-023-00919-w. Epub 2023 Jul 25.

The international spinal cord injury pain basic data set (version 3.0)

Eva Widerström-Noga  1   2 , Fin Biering-Sørensen  3 , Thomas N Bryce  4 , Diana D Cardenas  5 , Nanna B Finnerup  6 , Mark P Jensen  7 , J Scott Richards  8 , Jan Rosner  9   10 , Julian Taylor  11   12   13
Affiliations

The international spinal cord injury pain basic data set (version 3.0)

Eva Widerström-Noga et al. Spinal Cord. 2023 Oct.

Abstract

Study design: Expert opinion, feedback, revisions, and final consensus.

Objectives: To update the International Spinal Cord Injury Pain Basic Data Set (ISCIPBDS version 2.0) and incorporate suggestions from the SCI pain clinical and research community with respect to overall utility.

Setting: International.

Methods: The ISCIPBDS working group evaluated these suggestions and made modifications. The revised ISCIPBDS (Version 3.0) was then reviewed by members of the International SCI Data Sets Committee, the American Spinal Injury Association (ASIA) Board, the International Spinal Cord Society (ISCoS) Executive and Scientific Committees, individual reviewers and societies, and posted on the ASIA and ISCoS websites for 1 month to elicit comments before final approval by ASIA and ISCoS.

Results: The ISCIPBDS (Version 3.0) was updated to make the dataset more flexible and useful: 1. The assessment can be based on the patient's perception of several of his/her "worst" pain(s) or based on the International SCI Pain (ISCIP) Classification-defined or other pain types, depending on the specific research questions or clinical needs. 2. Pain interference should usually be rated for overall pain but may also be used for specific pain problems if needed. 3. An optional pain drawing was added to complement the check box documentation of pain location. 4. Data categories consistent with the Extended Pain Dataset list of current treatments were added. 5. Several new training cases were added.

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References

    1. Widerström-Noga E, Biering-Sørensen F, Bryce T, Cardenas DD, Finnerup NB, Jensen MP, et al. The international spinal cord injury pain basic data set. Spinal Cord. 2008;46:818–23. - DOI - PubMed
    1. Widerström-Noga E, Biering-Sørensen F, Bryce T, Cardenas DD, Finnerup NB, Jensen MP, et al. The international spinal cord injury pain basic data set (version 2.0). Spinal Cord. 2014;52:282–6. - DOI - PubMed
    1. Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharif-Alhoseini M, Kheiri G, et al. The data set development for the National Spinal Cord Injury Registry of Iran (NSCIR-IR): progress toward improving the quality of care. Spinal Cord Ser Cases. 2020;6:17. - DOI - PMC - PubMed
    1. Nachtegaal J, van Langeveld SA, Slootman H, Post MWM.Dutch-Flemish Spinal Cord Society Implementation of a standardized dataset for collecting information on patients with spinal cord injury. Top Spinal Cord Inj Rehabil. 2018;24:133–40. - DOI - PMC - PubMed
    1. Biering-Sørensen F, Alai S, Anderson K, Charlifue S, Chen Y, DeVivo M, et al. Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke project. Spinal Cord. 2015;53:265–77. - DOI - PMC - PubMed