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. 2023 Jul 5;10(7):1167.
doi: 10.3390/children10071167.

The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study

Marie Friedel  1   2 , Isabelle Aujoulat  3 , Bénédicte Brichard  4 , Christine Fonteyne  5 , Marleen Renard  6 , Jean-Marie Degryse  7
Affiliations

The Quality of Life of Children Facing Life-Limiting Conditions and That of Their Parents in Belgium: A Cross-Sectional Study

Marie Friedel et al. Children (Basel). .

Abstract

Background: Paediatric palliative care (PPC) aims to improve children's quality of life, but this outcome is rarely measured in clinical care. PPC is provided in Belgium through six transmural paediatric liaison teams (PLTs) ensuring continuity of care for children with life-limiting or life-threatening conditions (LLC/LTC). This study aims to measure the quality of life (QoL) of children with LLC/LTC followed-up by PLTs and the QoL of their parents.

Methods: During interviews, an original socio demographic questionnaire, the Children palliative outcome scale-version 2 (CPOS-2), the Fragebogen für Kinder und Jugendliche zur Erfassung der gesundheitsbezogenen Lebensqualität (KINDL) and the Quality of life in life-threatening Illness-Family caregiver (QOLLTI-F) were filled in by PLT members. Statistics were used to investigate significant differences between scores. Results were discussed and interpreted with six PLTs.

Results: 73 children aged 1-18 were included in the study. Especially for items focusing on emotional items, children reported their QoL as higher than their parents did. The QoL scores were not significantly associated with the child's condition's severity.

Conclusions: This study provides, for the first time, an overview of the QoL of children and parents followed-up by PLTs in Belgium.

Keywords: Belgium; children’s palliative outcome scale (CPOS-2); life-limiting conditions; outcomes; paediatric palliative care; parents; patient-centred outcome measures; quality of life.

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Conflict of interest statement

The authors declare no conflict of interest.

Figures

Figure 1
Figure 1
Distribution of the subscale QoL scores as measured by the QOLLTI-F.
Figure 2
Figure 2
(A) Level of suffering in parents as assessed by the paediatrician in relation to the QOLLTI-F scores; (B) level of suffering in parents as assessed by the paediatrician in relation to the scores on Part B of the CPOS-2; (C) level of suffering in children as assessed by the paediatrician in relation to the scores on Part A of the CPOS-2.
See this image and copyright information in PMC

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