Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Aug 4:25:e48498.
doi: 10.2196/48498.

Toward Community-Based Natural Language Processing (CBNLP): Cocreating With Communities

Malvika Pillai #  1   2 , Ashley C Griffin #  2   3 , Clair A Kronk  4 , Terika McCall  4   5   6
Affiliations

Toward Community-Based Natural Language Processing (CBNLP): Cocreating With Communities

Malvika Pillai et al. J Med Internet Res. .

Abstract

Rapid development and adoption of natural language processing (NLP) techniques has led to a multitude of exciting and innovative societal and health care applications. These advancements have also generated concerns around perpetuation of historical injustices and that these tools lack cultural considerations. While traditional health care NLP techniques typically include clinical subject matter experts to extract health information or aid in interpretation, few NLP tools involve community stakeholders with lived experiences. In this perspective paper, we draw upon the field of community-based participatory research, which gathers input from community members for development of public health interventions, to identify and examine ways to equitably involve communities in developing health care NLP tools. To realize the potential of community-based NLP (CBNLP), research and development teams must thoughtfully consider mechanisms and resources needed to effectively collaborate with community members for maximal societal and ethical impact of NLP-based tools.

Keywords: ChatGPT; artificial intelligence; co-creation; co-design; collaboration; collaborative; community based; community-based participatory research; lived experience; lived experiences; machine learning; natural language processing; participatory; research design.

PubMed Disclaimer

Conflict of interest statement

Conflicts of Interest: TM is a member of the Clinical Diversity Advisory Board at Woebot Health, the Digital Wellbeing Advisory Board at Peer Health Exchange, and the advisory board at RACE Space Inc. The aforementioned companies were not involved in the writing of this article or the decision to submit it for publication. TM is also an associate editor of the Journal of Medical Internet Research.

Figures

Figure 1
Figure 1
Community-based natural language processing framework.
See this image and copyright information in PMC

References

    1. Hu K. ChatGPT sets record for fastest-growing user base - analyst note. Reuters. [2023-07-25]. https://www.reuters.com/technology/chatgpt-sets-record-fastest-growing-u...
    1. Pause Giant AI Experiments: An Open Letter. Future of Life Institute. [2023-04-23]. https://futureoflife.org/open-letter/pause-giant-ai-experiments/
    1. Blueprint for an AI bill of rights. White House. [2023-07-25]. https://www.whitehouse.gov/ostp/ai-bill-of-rights/
    1. Governance Guidelines for Implementation of AI Principles Ver 1.1. Japan Ministry of Economy, Trade and Industry. [2025-07-25]. https://www.meti.go.jp/english/press/2022/0128_003.html .
    1. Sylolypavan A, Sleeman D, Wu H, Sim M. The impact of inconsistent human annotations on AI driven clinical decision making. NPJ Digit Med. 2023 Feb 21;6(1):26. doi: 10.1038/s41746-023-00773-3. doi: 10.1038/s41746-023-00773-3.10.1038/s41746-023-00773-3 - DOI - DOI - PMC - PubMed

Publication types

MeSH terms

LinkOut - more resources