UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Jean Bousquet^{1

2

3}, Boleslaw Samolinski⁴, Igor Kaidashev⁵, Marcus Maurer^{1

2}, Nicolas Roche^{6

7}, Bernardo Sousa-Pinto^{8

9}, Andrii Kurchenko¹⁰, Roman Stepanenko¹¹, Vladyslav Tsaryk¹⁰, Ludger Klimek^{12

13}, Maria Teresa Ventura^{14

15}, Anna Bedbrook^{3

16}, Wienczyslawa Czarlewski^{3

17}, Yuliia Lysanets⁵, Maciej Kupczyk¹⁸, Łukasz Skolimowski¹⁹, Marek Kulus²⁰, Stefano Del Giacco²¹, Markus Ollert^{22

23

24}, Judith Garcia-Aymerich^{25

26}, Carlos Robalo Cordeiro²⁷, Arzu Yorgancioglu²⁸, Christoph Schlapbach²⁹, Rita Amaral^{8

9}, Cristina Bonaglia³⁰, Isabelle Bossé³¹, Rosalba Buquicchio³², Demetrios Christou^{1

2}, Galyna Fedoruk¹⁰, Pietro Fontanesi³⁰, Bilun Gemicioglu³³, Antonio F M Giuliano^{14

34}, Paolo Lepore³⁵, Alla Nakonechna^{36

37}, Sophia Neisinger^{1

2}, Ana M Pereira^{8

9}, Aiste Ramanauskaite^{1

2}, Filip Raciborski⁴, Brigita Sitkauskiene³⁸, Oksana Sokhatska³⁹, Viktor Stepanenko¹¹, Katarina Stevanovic^{1

2}, Orysya Syzon⁴⁰, Violeta Kvedariene^{41

42}, Govert de Vries⁴³, Michiel van Eerd⁴³, Arunas Valiulis^{44

45}, Joao A Fonseca^{8

9}, Josep M Anto^{25

26

46}, Tari Haahtela⁴⁷, Holger Schünemann⁴⁸, Torsten Zuberbier^{1

2}

Affiliations

¹ Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
² Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
³ MASK-air, Montpellier, France.
⁴ Department of Prevention of Environmental Hazards, Allergology and Immunology, Medical University of Warsaw, Warsaw, Poland.
⁵ Poltava State Medical University, Poltava, Ukraine.
⁶ Pneumologie, AP-HP Centre Université de Paris Cité, Hôpital Cochin, Paris, France.
⁷ UMR 1016, Institut Cochin, Paris, France.
⁸ MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
⁹ CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.
¹⁰ Department of Clinical Immunology and Allergology with section of Medical Genetic, Bogomolets National Medical University, Kiev, Ukraine.
¹¹ Department of Dermatology and Venereology with Cosmetology Course, Bogomolets National Medical University, Kiev, Ukraine.
¹² Department of Otolaryngology, Head and Neck Surgery, Universitätsmedizin Mainz, Mainz, Germany.
¹³ Center for Rhinology and Allergology, Wiesbaden, Germany.
¹⁴ Allergy and Clinical Immunology, University of Bari Medical School, Bari, Italy.
¹⁵ Institute of Sciences of Food Production, National Research Council (ISPA-CNR), Bari, Italy.
¹⁶ ARIA, Montpellier, France.
¹⁷ Medical Consulting Czarlewski, Levallois, France.
¹⁸ Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland.
¹⁹ Polish Society of Allergology, Warsaw, Poland.
²⁰ Department of Pediatric Respiratory Diseases and Allergology, Medical University of Warsaw, Warsaw, Poland.
²¹ Department of Medical Sciences and Public Health and Unit of Allergy and Clinical Immunology, University Hospital 'Duilio Casula', University of Cagliari, Cagliari, Italy.
²² Department of Infection and Immunity, Luxembourg Institute of Health, Esch-sur-Alzette, Luxembourg.
²³ Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.
²⁴ Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark.
²⁵ ISGlobal, Barcelona Institute for Global Health, Barcelona, Spain.
²⁶ Universitat Pompeu Fabra (UPF), Barcelona, Spain.
²⁷ Department of Pneumology, Coimbra University Hospital, Faculty of Medicine, Coimbra, Portugal.
²⁸ Department of Pulmonary Diseases, Celal Bayar University, Faculty of Medicine, Manisa, Turkey.
²⁹ Bern University Hospital, Bern, Switzerland.
³⁰ Institute 'Bona Sforza', University for Linguistic Mediators, Bari, Italy.
³¹ Allergist, La Rochelle, France.
³² Department of Dermatology, Perrino Hospital, Brindisi, Italy.
³³ Department of Pulmonary Diseases, Istanbul University-Cerrahpaşa, Cerrahpaşa Faculty of Medicine, Istanbul, Turkey.
³⁴ Department of Internal Medicine 'A. Murri', University of Bari Medical School, Bari, Italy.
³⁵ Rotary Club Bari Mediterranean RY23/24, Bari, Italy.
³⁶ Clinical Immunology and Allergy Unit, Sheffield Teaching Hospitals, Sheffield, UK.
³⁷ University of Liverpool, Liverpool, UK.
³⁸ Department of Immunology and Allergology, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania.
³⁹ Basic & Clinical Immunology Unit, Department of Pathology, Faculty of Medicine of the University of Porto, Porto, Portugal.
⁴⁰ Department of Dermatology, Venereology, Danylo Halytsky Lviv National Medical University, Lviv, Ukraine.
⁴¹ Institute of Clinical Medicine, Clinic of Chest Diseases and Allergology, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.
⁴² Department of Pathology, Faculty of Medicine, Institute of Biomedical Sciences, Vilnius University, Vilnius, Lithuania.
⁴³ Peercode BV, Geldermalsen, The Netherlands.
⁴⁴ Interdisciplinary Research Group of Human Ecology, Institute of Clinical Medicine and Institute of Health Sciences, Medical Faculty of Vilnius University, Vilnius, Lithuania.
⁴⁵ European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium.
⁴⁶ CIBER Epidemiología y Salud Pública (CIBERESP), Barcelona, Spain.
⁴⁷ Skin and Allergy Hospital, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
⁴⁸ Department of Health Research Methods, Evidence, and Impact & Department of Medicine, McMaster University, Hamilton, Ontario, Canada.

PMID: 37641384
DOI: 10.1111/all.15855

Free article

Review

UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Jean Bousquet et al. Allergy. 2023 Oct.

Free article

. 2023 Oct;78(10):2581-2595.

doi: 10.1111/all.15855. Epub 2023 Aug 28.

Authors

Affiliations

¹ Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
² Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
³ MASK-air, Montpellier, France.
⁴ Department of Prevention of Environmental Hazards, Allergology and Immunology, Medical University of Warsaw, Warsaw, Poland.
⁵ Poltava State Medical University, Poltava, Ukraine.
⁶ Pneumologie, AP-HP Centre Université de Paris Cité, Hôpital Cochin, Paris, France.
⁷ UMR 1016, Institut Cochin, Paris, France.
⁸ MEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
⁹ CINTESIS@RISE- Health Research Network, Faculty of Medicine, University of Porto, Porto, Portugal.
¹⁰ Department of Clinical Immunology and Allergology with section of Medical Genetic, Bogomolets National Medical University, Kiev, Ukraine.
¹¹ Department of Dermatology and Venereology with Cosmetology Course, Bogomolets National Medical University, Kiev, Ukraine.
¹² Department of Otolaryngology, Head and Neck Surgery, Universitätsmedizin Mainz, Mainz, Germany.
¹³ Center for Rhinology and Allergology, Wiesbaden, Germany.
¹⁴ Allergy and Clinical Immunology, University of Bari Medical School, Bari, Italy.
¹⁵ Institute of Sciences of Food Production, National Research Council (ISPA-CNR), Bari, Italy.
¹⁶ ARIA, Montpellier, France.
¹⁷ Medical Consulting Czarlewski, Levallois, France.
¹⁸ Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland.
¹⁹ Polish Society of Allergology, Warsaw, Poland.
²⁰ Department of Pediatric Respiratory Diseases and Allergology, Medical University of Warsaw, Warsaw, Poland.
²¹ Department of Medical Sciences and Public Health and Unit of Allergy and Clinical Immunology, University Hospital 'Duilio Casula', University of Cagliari, Cagliari, Italy.
²² Department of Infection and Immunity, Luxembourg Institute of Health, Esch-sur-Alzette, Luxembourg.
²³ Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark.
²⁴ Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark.
²⁵ ISGlobal, Barcelona Institute for Global Health, Barcelona, Spain.
²⁶ Universitat Pompeu Fabra (UPF), Barcelona, Spain.
²⁷ Department of Pneumology, Coimbra University Hospital, Faculty of Medicine, Coimbra, Portugal.
²⁸ Department of Pulmonary Diseases, Celal Bayar University, Faculty of Medicine, Manisa, Turkey.
²⁹ Bern University Hospital, Bern, Switzerland.
³⁰ Institute 'Bona Sforza', University for Linguistic Mediators, Bari, Italy.
³¹ Allergist, La Rochelle, France.
³² Department of Dermatology, Perrino Hospital, Brindisi, Italy.
³³ Department of Pulmonary Diseases, Istanbul University-Cerrahpaşa, Cerrahpaşa Faculty of Medicine, Istanbul, Turkey.
³⁴ Department of Internal Medicine 'A. Murri', University of Bari Medical School, Bari, Italy.
³⁵ Rotary Club Bari Mediterranean RY23/24, Bari, Italy.
³⁶ Clinical Immunology and Allergy Unit, Sheffield Teaching Hospitals, Sheffield, UK.
³⁷ University of Liverpool, Liverpool, UK.
³⁸ Department of Immunology and Allergology, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania.
³⁹ Basic & Clinical Immunology Unit, Department of Pathology, Faculty of Medicine of the University of Porto, Porto, Portugal.
⁴⁰ Department of Dermatology, Venereology, Danylo Halytsky Lviv National Medical University, Lviv, Ukraine.
⁴¹ Institute of Clinical Medicine, Clinic of Chest Diseases and Allergology, Faculty of Medicine, Vilnius University, Vilnius, Lithuania.
⁴² Department of Pathology, Faculty of Medicine, Institute of Biomedical Sciences, Vilnius University, Vilnius, Lithuania.
⁴³ Peercode BV, Geldermalsen, The Netherlands.
⁴⁴ Interdisciplinary Research Group of Human Ecology, Institute of Clinical Medicine and Institute of Health Sciences, Medical Faculty of Vilnius University, Vilnius, Lithuania.
⁴⁵ European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium.
⁴⁶ CIBER Epidemiología y Salud Pública (CIBERESP), Barcelona, Spain.
⁴⁷ Skin and Allergy Hospital, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
⁴⁸ Department of Health Research Methods, Evidence, and Impact & Department of Medicine, McMaster University, Hamilton, Ontario, Canada.

PMID: 37641384
DOI: 10.1111/all.15855

Abstract

Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK-air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK-air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID-developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)-is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.

Keywords: Ukrainian refugees; asthma; mHealth; rhinitis; urticaria.

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References

REFERENCES

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UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Affiliations

UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Authors

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Abstract

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