The Work Ahead for Intellectual and Developmental Disabilities Research
- PMID: 37644864
- PMCID: PMC10773982
- DOI: 10.1352/1944-7558-128.5.388
The Work Ahead for Intellectual and Developmental Disabilities Research
Abstract
In "Toward Equity in Research on Intellectual and Developmental Disabilities," we sought to make entrenched assumptions and practices of intellectual and developmental disabilities research visible by explicitly describing the status quo in terms of models of disability, participant and researcher identities, research priorities, and biases in measurement and treatment approaches. We then curated individual- and systems-level actions drawn from disability justice and broader social justice lenses to offer a way forward. We focused on three major areas (i.e., intersectionality and person-centered approaches, participatory research, and interprofessional collaboration), depicting influences, methods, and actions in a framework of disability, identity, and culture. In this Author Response, we address five commentaries that critique and extend that synthesis.
Keywords: anti-racist frameworks; intersectionality; reproducibility; research practices.
©AAIDD.
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Comment on
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The Equity Agenda in Intellectual and Developmental Disabilities Research.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):379-381. doi: 10.1352/1944-7558-128.5.379. Am J Intellect Dev Disabil. 2023. PMID: 37644856
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Intellectual and Developmental Disability Research: Success Through Inclusion and Equity.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):371-374. doi: 10.1352/1944-7558-128.5.371. Am J Intellect Dev Disabil. 2023. PMID: 37644859
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Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture's Perspective.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):375-378. doi: 10.1352/1944-7558-128.5.375. Am J Intellect Dev Disabil. 2023. PMID: 37644860
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The Role of Journal Editors in Implementing Equity-Focused Research.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):386-387. doi: 10.1352/1944-7558-128.5.386. Am J Intellect Dev Disabil. 2023. PMID: 37644862
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Moving the Needle Toward Equity: What NIH Is Doing to Promote Diversity, Inclusion, and Accessibility in Research on Intellectual and Developmental Disabilities.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):382-385. doi: 10.1352/1944-7558-128.5.382. Am J Intellect Dev Disabil. 2023. PMID: 37644863
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Toward Equity in Research on Intellectual and Developmental Disabilities.Am J Intellect Dev Disabil. 2023 Sep 1;128(5):350-370. doi: 10.1352/1944-7558-128.5.350. Am J Intellect Dev Disabil. 2023. PMID: 37644865 Free PMC article.
References
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- American Medical Association and Association of American Medical Colleges. Advancing health equity: a guide to language, narrative and concepts. Available at: www.ama-assn.org/equity-guide. Accessed February 15, 2023.
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- Bigby C, Frawley P, & Ramcharan P (2014). Conceptualizing inclusive research with people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3–12. - PubMed
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