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Comment
. 2023 Sep 1;128(5):388-392.
doi: 10.1352/1944-7558-128.5.388.

The Work Ahead for Intellectual and Developmental Disabilities Research

Affiliations
Comment

The Work Ahead for Intellectual and Developmental Disabilities Research

Sara T Kover et al. Am J Intellect Dev Disabil. .

Abstract

In "Toward Equity in Research on Intellectual and Developmental Disabilities," we sought to make entrenched assumptions and practices of intellectual and developmental disabilities research visible by explicitly describing the status quo in terms of models of disability, participant and researcher identities, research priorities, and biases in measurement and treatment approaches. We then curated individual- and systems-level actions drawn from disability justice and broader social justice lenses to offer a way forward. We focused on three major areas (i.e., intersectionality and person-centered approaches, participatory research, and interprofessional collaboration), depicting influences, methods, and actions in a framework of disability, identity, and culture. In this Author Response, we address five commentaries that critique and extend that synthesis.

Keywords: anti-racist frameworks; intersectionality; reproducibility; research practices.

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Figures

Figure 1.
Figure 1.
Resource-allocating entities (outer ring) and systems and processes (center) that determine the impact of IDD research in the context of frameworks & theories and actions & approaches with the potential to perturb inequitable assumptions and practices (Belcher et al., 2023; Bonney & Elison, 2023; Johnson, 2023; King & Parisi, 2023; Thoma & Scott, 2023).

Comment on

References

    1. American Medical Association and Association of American Medical Colleges. Advancing health equity: a guide to language, narrative and concepts. Available at: www.ama-assn.org/equity-guide. Accessed February 15, 2023.
    1. Annamma SA, Connor D, & Ferri B (2013). Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability. Race Ethnicity and Education, 16(1), 1–31.
    1. Bigby C, Frawley P, & Ramcharan P (2014). Conceptualizing inclusive research with people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3–12. - PubMed
    1. Burks-Abbott G (2022). A theory of mine: My perspective on perspective-taking. Autism in Adulthood,4(4), 265–267. - PMC - PubMed
    1. Charlton JI (2000). Nothing about us without us: Disability oppression and empowerment. Univ of California Press.

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