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. 2023 Aug 2;7(1):e178.
doi: 10.1017/cts.2023.602. eCollection 2023.

Roadmap to engagement: Bringing patient partners into cancer research and beyond

Kim S Kimminau  1 , Cheryl Jernigan  2 , Hope Krebill  3 , Sara Douglas  4 , Jill Peltzer  5 , Jill Hamilton-Reeves  6 , Ronald C Chen  7 , Roy Jensen  2
Affiliations

Roadmap to engagement: Bringing patient partners into cancer research and beyond

Kim S Kimminau et al. J Clin Transl Sci. .

Abstract

The University of Kansas Cancer Center (KU Cancer Center) initiated an engagement program to leverage the lived experience of individuals and families with cancer. KU Cancer Center faculty, staff, and patient partners built an infrastructure to achieve a patient-designed, patient-led, and research-informed engagement program called Patient and Investigator Voices Organizing Together (PIVOT). This special communication offers an engagement roadmap that can be replicated, scaled, and adopted at other cancer centers and academic health systems. PIVOT demonstrates that collaboration among academic leaders, investigators, and people with a lived experience yields a patient-centered, vibrant environment that enriches the research enterprise.

Keywords: Cancer; education; engagement model; patient; team science.

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Conflict of interest statement

The authors have no conflicts of interest to declare.

Figures

Figure 1.
Figure 1.
Patient and investigator voices organizing together (PIVOT) roadmap.
Figure 2.
Figure 2.
Use of PIVOT by KU Cancer Center investigators. CB = cancer biology; CPC = cancer prevention and control; D3ET=drug discovery, delivery, and experimental therapeutics.
See this image and copyright information in PMC

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