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Review
. 2024 Mar;44(3):333-338.
doi: 10.1038/s41372-023-01779-1. Epub 2023 Sep 21.

Prenatally-diagnosed renal failure: an ethical framework for decision-making

Jacqueline Glover  1 , Margret Bock  2 , Regina Reynolds  3 , Michael Zaretsky  4 , Vijaya Vemulakonda  5
Affiliations
Review

Prenatally-diagnosed renal failure: an ethical framework for decision-making

Jacqueline Glover et al. J Perinatol. 2024 Mar.

Abstract

The Children's Hospital Working Group has developed an ethical framework to guide patient care and research for prenatally diagnosed severe renal anomalies. It identifies ethical challenges in communication, timing of decisions and scarce resources. Key elements include shared decision-making, establishing a trusting relationship, and managing disagreement. The ethical framework will be used to develop a clinical pathway that operationalizes the key values of trust, honesty, transparency, beneficence, nonmaleficence, respecting parental authority, professional integrity, and justice.

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References

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