Prioritising Informed Health Choices Key Concepts for those impacted by cancer: a protocol

Abstract

Background: Few areas of health have been as insidiously influenced by misinformation as cancer. Thus, interventions that can help people impacted by cancer reduce the extent to which they are victims of misinformation are necessary. The Informed Health Choices (IHC) initiative has developed Key Concepts that can be used in the development of interventions for evaluating the trustworthiness of claims about the effects of health treatments. We are developing an online education programme called Informed Health Choices-Cancer (IHC-C) based on the IHC Key Concepts. We will provide those impacted by cancer with the knowledge and skills necessary to think critically about the reliability of health information and claims and make informed choices. Methods: We will establish a steering group (SG) of 12 key stakeholders, including oncology specialists and academics. In addition, we will establish a patient and public involvement (PPI) panel of 20 people impacted by cancer. After training the members on the Key Concepts and the prioritisation process, we will conduct a two-round prioritisation process. In the first round, 12 SG members and four PPI panel members will prioritise Key Concepts for inclusion. In the second round, the remaining 16 PPI members will undertake the prioritisation based on the prioritised Key Concepts from the first round. Participants in both rounds will use a structured judgement form to rate the importance of the Key Concepts for inclusion in the online IHC-C programme. A consensus meeting will be held, where members will reach a consensus on the Key Concepts to be included and rank the order in which the prioritised Key Concepts will be addressed in the IHC-C programme. Conclusions: At the end of this process, we will identify which Key Concepts should be included and the order in which they should be addressed in the IHC-C programme.

Keywords: cancer; learning resources; informed choices; critical thinking.

Figure 1.. Prioritisation process for the IHC-C Key Concepts.

*( a) ( b): The 20 PPI members will be divided into two groups for the two rounds of prioritisation. Group ( a) will include four PPI partners who will participate in the first round of prioritisation, and group ( b) will include 16 PPI partners who will participate in the second round of prioritisation. *PPI: Patients and Public Involvement; PPIs: Patients and Public Involvement members; SGs: steering group members; KCs: Key Concepts; IHC-C: Informed Health Choices-Cancer.