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. 2023 Sep 21;20(18):6797.
doi: 10.3390/ijerph20186797.

Measuring Māori Health, Wellbeing, and Disability in Aotearoa Using a Web-Based Survey Methodology

Tristram R Ingham  1   2   3 , Bernadette Jones  1   2 , Meredith Perry  4 , Martin von Randow  5 , Barry Milne  5 , Paula T King  6 , Linda W Nikora  7 , Andrew Sporle  8   9 , Te Ao Mārama Study Group
Affiliations

Measuring Māori Health, Wellbeing, and Disability in Aotearoa Using a Web-Based Survey Methodology

Tristram R Ingham et al. Int J Environ Res Public Health. .

Abstract

High-quality evidence on the prevalence and impact of health, wellbeing, and disability among Māori, and other Indigenous peoples, is crucial for mitigating health inequities. Current surveys are predominantly centred within a biomedical paradigm, with the constructs mismatched with Indigenous worldviews. We aimed to develop and deploy an accessible and culturally grounded survey exploring Māori health, wellbeing, and disability using a Kaupapa Māori Research methodology. An extensive codesign process with Māori community partners interrogated all aspects of the design to ensure the process and outcomes met the needs of Māori. A large-scale, nationally representative survey of people of Māori descent was conducted. We used a multi-modal deployment approach that included online and alternate methods of completion. Our analysis included a novel dual-weighting system to ensure generalisability of results to the national Māori population. This achieved a survey of 7230 participants, a sample size comparable with government-administered surveys. The response rate was 11.1%, with 7.3% opting for alternate methods. A high completion rate of 93.4% was observed. This approach demonstrated a high level of engagement, resulting in an unprecedented collection of Māori health, wellbeing, and disability data. This highlights the importance of Indigenous codesign for ensuring accessible and culturally appropriate survey methods.

Keywords: Kaupapa Māori research methods; disability; indigenous methodology; indigenous survey design.

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Conflict of interest statement

Authors Tristram Ingham, Bernadette Jones, Meredith Perry, and Paula King are employed by the University of Otago. Authors Martin von Randow, Barry Milne, Linda Nikora, and Andrew Sporle are employed by the University of Auckland. Authors Tristram Ingham, Bernadette Jones, are trustees of the Foundation for Equity and Research New Zealand. Author Tristram Ingham is a trustee of the Te Ao Mārama Aotearoa Trust. Author Andrew Sporle is employed by iNZight Analytics Limited.

Figures

Figure A1
Figure A1
Survey item response rate—proportion (blue bars) of each question item completed in survey presentation order.
Figure A2
Figure A2
Comparison of unweighted participant demographics (blue) versus electoral roll sample (red).
Figure A3
Figure A3
Comparison of electoral roll-weighted participant demographics (blue) versus electoral roll sample (red).
Figure A4
Figure A4
Comparison of electoral roll-weighted participant demographics (blue) versus Administrative Population Census (APC) (red)—unweighted to APC.
Figure A5
Figure A5
Comparison of APC-weighted participant demographics (blue) versus Administrative Population Census (APC) (red).
Figure 1
Figure 1
Conceptual overview showing main methodological components to survey development and deployment.
Figure 2
Figure 2
Flow diagram of participant progress through phases of the study eligibility and enrolment processes.
Figure 3
Figure 3
Recruitment progress showing responses to invitations and reminders.
See this image and copyright information in PMC

References

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    1. Statistics New Zealand . He hauā Māori: Findings from the 2013 Disability Survey. Statistics New Zealand; Wellington, New Zealand: 2015.
    1. Hollinsworth D. Decolonizing Indigenous disability in Australia. Disabil. Soc. 2013;28:601–615. doi: 10.1080/09687599.2012.717879. - DOI
    1. Ingham T.R., Jones B., Perry M., King P.T., Baker G., Hickey H., Pouwhare R., Nikora L.W. The Multidimensional Impacts of Inequities for Tangata Whaikaha Māori (Indigenous Māori with Lived Experience of Disability) in Aotearoa, New Zealand. Int. J. Environ. Res. Public Health. 2022;19:13558. doi: 10.3390/ijerph192013558. - DOI - PMC - PubMed

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