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. 2023 Sep 5;10(9):1510.
doi: 10.3390/children10091510.

Parents' Experiences and Perceptions of Healthcare Transition in Adolescents with Asthma: A Qualitative Study

Hyekyun Rhee  1 , Lindsay Batek  2 , Lynn Rew  1 , Laurene Tumiel-Berhalter  3
Affiliations

Parents' Experiences and Perceptions of Healthcare Transition in Adolescents with Asthma: A Qualitative Study

Hyekyun Rhee et al. Children (Basel). .

Abstract

Adolescence marks a significant transition from pediatric to adult healthcare, and parents play critical roles in supporting their adolescents with chronic conditions through this process. However, little is known about parents' experiences, perceptions, and needs during this healthcare transition. This qualitative study explores the experiences and perceptions of parents regarding the care transition of their 16-17-year-old adolescents with asthma. Nineteen mothers participated in either a focus group or individual interviews, and a content analysis was conducted on the data. Parents expressed negative emotions and various concerns about their teens' transition readiness and asthma management. A need for early transition training for both adolescents and parents was discussed. Overall, the complexity and challenges associated with the healthcare transition of adolescents with asthma take a toll on parents, particularly when their teens are not adequately prepared to manage asthma independently. Parents need appropriate anticipatory guidance regarding the transition and skills to navigate changing roles and negotiate asthma care responsibilities with their teens. Timely interventions and support strategies for both adolescents and parents are needed to ensure the successful healthcare transition of adolescents with asthma.

Keywords: adolescents; asthma; healthcare transition; parental perceptions and experience.

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Conflict of interest statement

The authors declare no conflict of interest.

Figures

Figure 1
Figure 1
Summary of categories and themes. The inner circle of the chart depicts the six categories, or the manifest content of the text, which are also visible in the legend to the right side of the chart. These categories are further detailed by the themes provided in the outer circle of the chart. The themes reflecting the underlying meaning, or latent content, of the text are direct quotations from parent interviews and indicate the perceptions that parents shared regarding their teens’ healthcare transition.
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