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. 2023 Dec;33(6):497-502.
doi: 10.1111/tme.13011. Epub 2023 Sep 29.

How do we translate gaps and unmet needs of blood management for thalassemia into a collaborative implementation framework?

Chanin Limwongse  1 , Ponlapat Rojnuckarin  2 , Pawinee Kupatawintu  3 , Aphisit Thongthaisin  3 , Parichart Permpikul  4 , Pimpan Kitpoka  5 , Phandee Watanaboonyongcharoen  6 , Pranee Sucharitchan  6 , Kitti Torcharus  7 , Suthat Fucharoen  8 , Khachen Kongpakwattana  1 , Osot Nerapusee  9 , Suporn Chuncharunee  5
Affiliations

How do we translate gaps and unmet needs of blood management for thalassemia into a collaborative implementation framework?

Chanin Limwongse et al. Transfus Med. 2023 Dec.

Abstract

Background and objective: The mainstay of management for thalassemia is regular blood transfusions. However, gaps and unmet needs of blood services for thalassemia are still not clearly identified and addressed in Thailand, a country prevalent with thalassemia. What can be a collaborative implementation framework that helps advance practices and policies relating to blood management for thalassemia?

Methods: The first Blood & Beyond Roundtable Discussion was held in July 2022 to gather the current situation, gaps, and unmet needs of blood services for thalassemia from multidisciplinary experts and thalassemic patients. The Implementation Guide as suggested by the Centre for Effective Services was applied as a tool to consolidate information from the discussions and construct the collaborative implementation framework.

Results: The National Blood Center and hospitals in Thailand followed the missions specified in the National Blood Policy and the standard guidelines to ensure the best practice of blood management for thalassemia. However, there were six gaps and unmet needs identified from the discussions. After all discussion points were mapped onto the framework, an implementation plan comprised of five specific activities became clear and actionable.

Conclusion: Without the complete information from both experts and patients, the implementation plan would not have been successfully constructed. The method that we employed to translate all information into the framework can be adapted by other countries to develop their own specific framework efficiently.

Keywords: blood management; implementation framework; thalassemia.

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References

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