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. 2023 Sep-Oct;45(5):34-38.
doi: 10.1002/eahr.500181.

Translational Research and Communities

Megan Doerr  1 , Joon-Ho Yu  2
Affiliations

Translational Research and Communities

Megan Doerr et al. Ethics Hum Res. 2023 Sep-Oct.

Abstract

Impactful translational research requires new approaches to computational analysis and bioethics, both of which have been advanced by adoption of community-engagement strategies. Community knowledge and experience will hone data collection, research, and insights and accelerate the impact of derived translational applications to improve individual health, medical decision-making, and public health policy. In the context of translational research with big health data, meaningful community-researcher engagement will require developing and deploying coengagement tools across the research life cycle and developing approaches for novel coproduction.

Keywords: big data; bioethics; community engagement; translational research.

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References

REFERENCES

    1. Rothstein, M. A., “Translational Bioethics and Health Privacy,” Ethics & Human Research 45, no. 3 (2023): 40-44.
    1. Szalavitz, M., “The Pain Was Unbearable. So Why Did Doctors Turn Her Away?,” Wired, August 11, 2021.
    1. Fox, K., “The Illusion of Inclusion-the ‘All of Us’ Research Program and Indigenous Peoples’ DNA,” New England Journal of Medicine 383, no. 5 (2020): 411-13.
    1. National Institutes of Health, All of Us Research Program, All of Us Research Program Tribal Consultation Final Report (National Institutes of Health, March 16, 2021), https://allofus.nih.gov/all-us-research-program-tribal-consultation-fina....
    1. Domecq, J. P., et al., “Patient Engagement in Research: A Systematic Review,” BMC Health Services Research 14 (2014): doi:10.1186/1472-6963-14-89; Hoos, A., et al., “Partnering with Patients in the Development and Lifecycle of Medicines,” Therapeutic Innovation & Regulatory Science 49, no. 6 (2015): 929-39; Staley, K., and V. Minogue, “User Involvement Leads to More Ethically Sound Research,” Clinical Ethics 1, no. 2 (2006): 95-100.

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