Competing interests: OF is patient chair of SHARP (Severe Heterogenous Research collaboration - patient centred), which is a European Respiratory Society clinical research collaboration. It also has funding from various pharma companies but OF is not paid in her role. She is involved in charities for asthma on a voluntary basis. She is a member of the expert patient panel at Asthma + Lung UK; a Respiratory Voices group member at Asthma + Lung UK; a member of the Lung Health Cross Party Group at the Scottish Parliament; a member of the editorial advisory board at BMJ Open Respiratory Research; a member of the Astra Zeneca Patient Partnership Program; and founder and facilitator of Severe Asthma Peer Support Group.