Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

Affiliations

¹ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia. Electronic address: Emma.Karran@unisa.edu.au.
² The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia; Faculty of Medicine and Health, School of Health Sciences, University of New South Wales, Sydney, New South Wales, Australia.
³ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia.
⁴ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia; Northern Adelaide Local Health Network, Adelaide, South Australia, Australia.
⁵ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of General Practice, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
⁶ Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Temerty School of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁷ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Child Health Evaluative Sciences, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, Ontario, Canada.
⁸ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
⁹ InBalance Physiotherapy, Launceston, Tasmania, Australia.
¹⁰ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of Medicine and School of Epidemiology, University of Ottawa, Ottawa, Ontario, Canada.

PMID: 37802205
DOI: 10.1016/j.jclinepi.2023.09.017

Free article

Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

Emma L Karran et al. J Clin Epidemiol. 2023 Nov.

Free article

. 2023 Nov:163:70-78.

doi: 10.1016/j.jclinepi.2023.09.017. Epub 2023 Oct 4.

Authors

Affiliations

¹ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia. Electronic address: Emma.Karran@unisa.edu.au.
² The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia; Faculty of Medicine and Health, School of Health Sciences, University of New South Wales, Sydney, New South Wales, Australia.
³ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; IIMPACT in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia.
⁴ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia; Northern Adelaide Local Health Network, Adelaide, South Australia, Australia.
⁵ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of General Practice, Erasmus MC, University Medical Center, Rotterdam, The Netherlands.
⁶ Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada; Temerty School of Medicine, University of Toronto, Toronto, Ontario, Canada.
⁷ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Child Health Evaluative Sciences, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, Ontario, Canada.
⁸ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada.
⁹ InBalance Physiotherapy, Launceston, Tasmania, Australia.
¹⁰ The 'Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research' Collaboration; Department of Medicine and School of Epidemiology, University of Ottawa, Ottawa, Ontario, Canada.

PMID: 37802205
DOI: 10.1016/j.jclinepi.2023.09.017

Abstract

Objectives: Our objectives were to identify what and how data relating to the social determinants of health are collected and reported in equity-relevant studies and map these data to the PROGRESS-Plus framework.

Study design and setting: We performed a scoping review. We ran two systematic searches of MEDLINE and Embase for equity-relevant studies published during 2021. We included studies in any language without limitations to participant characteristics. Included studies were required to have collected and reported at least two participant variables relevant to evaluating individual-level social determinants of health. We applied the PROGRESS-Plus framework to identify and organize these data.

Results: We extracted data from 200 equity-relevant studies, providing 962 items defined by PROGRESS-Plus. A median of 4 (interquartile range = 2) PROGRESS-Plus items were reported in the included studies. 92% of studies reported age; 78% reported sex/gender; 65% reported educational attainment; 49% reported socioeconomic status; 45% reported race; 44% reported social capital; 33% reported occupation; 14% reported place and 9% reported religion.

Conclusion: Our synthesis demonstrated that researchers currently collect a limited range of equity-relevant data, but usefully provides a range of examples spanning PROGRESS-Plus to inform the development of improved, standardized practices.

Keywords: Equity; Guideline; Methods; PROGRESS-Plus; Scoping review; Social determinants of health.

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Conflict of interest statement

Declaration of competing interest E.L.K. has received speaker fees for lectures on pain and rehabilitation from professional and scientific bodies and reimbursement of travel costs related to presentations at scientific conferences/symposia. G.L.M. has received support from Reality Health, ConnectHealth UK, Institutes of Health California, AIA Australia, Workers’ Compensation Boards and professional sporting organisations in Australia, Europe, South America, and North America. Professional and scientific bodies have reimbursed him for travel costs related to presentation of research on pain and pain education at scientific conferences/symposia. He has received speaker fees for lectures on pain, pain education, and rehabilitation and conference travel support from Sequirus. He receives royalties for books on pain and pain education. P.T. has received consulting fees to provide independent medical consultation and professional services. He is an independent Committee Member for clinical trial Data Safety Monitoring Boards for FDA-approved trials being conducted by UCB Biopharma GmbH & SPRL, Parexel International, and Prahealth Sciences. P.T. is an [unpaid] Chair of the Management Subcommittee of the Executive Committee of a registered non-profit independent medical research organization, OMERACT. OMERACT receives unrestricted educational grants from the American College of Rheumatology, European League of Rheumatology, and several pharmaceutical companies listed in this section, which is used to support fellows and international patient groups and support a major international bi-annual conference which results in many peer-reviewed publications. There are no competing interests for any other author.

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Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

Affiliations

Using PROGRESS-plus to identify current approaches to the collection and reporting of equity-relevant data: a scoping review

Authors

Affiliations

Abstract

Conflict of interest statement

References

Publication types

MeSH terms

LinkOut - more resources

Full Text Sources

Miscellaneous