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. 2023 Dec;40(12):5131-5136.
doi: 10.1007/s12325-023-02638-3. Epub 2023 Oct 9.

Summary of Research: Collaboration Between Healthcare Professionals and People with Multiple Sclerosis to Develop Communication Tools to Improve the Standard of Multiple Sclerosis Care

Celia Oreja-Guevara  1 , Stanca Potra  2 , Birgit Bauer  3 , Diego Centonze  4 , Maria-Paz Giambastiani  5 , Gavin Giovannoni  6 , Jϋrg Kesselring  7 , Dawn Langdon  8 , Sarah Morrow  9 , Jocelyne Nouvet-Gire  10 , Maija Pontaga  11 , Peter Rieckmann  12 , Sven Schippling  13 , Nektaria Alexandri  14 , Jane Shanahan  15 , Heidi Thompson  16 , Pieter van Galen  17 , Patrick Vermersch  18 , David Yeandle  19
Affiliations

Summary of Research: Collaboration Between Healthcare Professionals and People with Multiple Sclerosis to Develop Communication Tools to Improve the Standard of Multiple Sclerosis Care

Celia Oreja-Guevara et al. Adv Ther. 2023 Dec.

Abstract

This is a summary of a previously published paper: Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. It describes a collaboration between people with multiple sclerosis (PwMS) and healthcare professionals (HCPs) to identify challenges in multiple sclerosis (MS) care and design tools to improve communication during consultations.

Keywords: Communication tools; MS care; Neurology; Shared decision-making.

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Conflict of interest statement

Celia Oreja-Guevara has received honoraria from Biogen Idec, Novartis, Sanofi Genzyme, Almirall, the healthcare business of Merck KGaA, Darmstadt, Germany. Diego Centonze is an advisory board member of Almirall, Bayer Schering, Biogen, GW Pharmaceuticals, the healthcare business of Merck KGaA, Darmstadt, Germany, Novartis, Roche, Sanofi-Genzyme, Teva and has received honoraria for speaking or consultation fees from Almirall, Bayer Schering, Biogen, GW Pharmaceuticals, the healthcare business of Merck KGaA, Darmstadt, Germany, Novartis, Roche, anofi-Genzyme, Teva. He is also the principal investigator in clinical trials for Bayer Schering, Biogen, the healthcare business of Merck KGaA, Darmstadt, Germany, Mitsubishi, Novartis, Roche, Sanofi-Genzyme, Teva. His preclinical and clinical research was supported by grants from Bayer Schering, Biogen Idec, Celgene, the healthcare business of Merck KGaA, Darmstadt, Germany, Novartis, Roche, Sanofi-Genzyme, Teva. Gavin Giovannoni has received compensation for serving as a consultant or speaker for or has received research support from AbbVie, Aslan, Atara Bio, Biogen, BMS-Celgene, GlaxoSmithKline, Janssens/J&J, Japanese Tobacco, Jazz Pharmaceuticals, LifNano, Merck & Co, Kenilworth, NJ, the healthcare business of Merck KGaA, Darmstadt, Germany/EMD Serono, Moderna, Novartis, Sanofi and Roche/Genentech. Sven Schippling receives research grants from US EMD Serono. Pieter van Galen has received honoraria from the healthcare business of Merck KGaA, Darmstadt, Germanyfor MS in the 21st Century activities, and has received consulting and speaking fees from Johnson & Johnson, Novartis, Merck N.V.-S.A., Overijse, Belgium, an affiliate of KGaA, Darmstadt, Germany, Celgene R&D Sarl, F. Hoffman-La Roche, NV Roche SA, Mylan GMBH and Excemed.

References

    1. Oreja-Guevara C, Potra S, Bauer B, et al. Joint healthcare professional and patient development of communication tools to improve the standard of MS care. Adv Ther. 2019;36(11):3238–3252. doi: 10.1007/s12325-019-01071-9. - DOI - PMC - PubMed

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