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Editorial
. 2023 Sep 27;11(19):2628.
doi: 10.3390/healthcare11192628.

Pain Care Management in Rare Diseases

Emérito Carlos Rodríguez-Merchán  1   2 , Matteo Nicola Dario Di Minno  3 , Gianluigi Pasta  4
Affiliations
Editorial

Pain Care Management in Rare Diseases

Emérito Carlos Rodríguez-Merchán et al. Healthcare (Basel). .

Abstract

In this Special Issue on "Musculoskeletal Pain Care and Management in Rare Disease", it is essential to make it clear that, while specialists in rare diseases (RDs) are often very knowledgeable about the management of the specific diseases in which they are experts, primary care physicians and other physicians who are not experts in a given disease often have very little contact with the patients who experience it [...].

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Conflict of interest statement

The authors declare no conflict of interest.

References

    1. Domaradzki J., Walkowiak D. Medical students’ knowledge and opinions about rare diseases: A case study from Poland. Intractable Rare Dis. Res. 2019;8:252–259. doi: 10.5582/irdr.2019.01099. - DOI - PMC - PubMed
    1. Budych K., Helms T.M., Schultz C. How do patients with rare diseases experience the medical encounter? Exploring role behavior and its impact on patient–physician interaction. Health Policy. 2012;105:154–164. doi: 10.1016/j.healthpol.2012.02.018. - DOI - PubMed
    1. Anderson M., Elliott E.J., Zurynski Y. Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J. Rare Dis. 2013;8:22. doi: 10.1186/1750-1172-8-22. - DOI - PMC - PubMed
    1. Wolyniak M.J., Bemis L.T., Prunuske A.J. Improving medical students’ knowledge of genetic disease: A review of current and emerging pedagogical practices. Adv. Med. Educ. Pract. 2015;6:597–607. doi: 10.2147/AMEP.S73644. - DOI - PMC - PubMed
    1. Bogart K.R., Irvin V.L. Health-related quality of life among adults with diverse rare disorders. Orphanet J. Rare Dis. 2017;12:177. doi: 10.1186/s13023-017-0730-1. - DOI - PMC - PubMed

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