Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2024 Feb;71(2):e30745.
doi: 10.1002/pbc.30745. Epub 2023 Oct 27.

Childhood cancer data initiative: Status report

Subhashini Jagu  1 , Elaine R Mardis  2 , Mary F Wedekind  3 , Brigitte C Widemann  3 , Rena K Kingery  4 , Samantha L Gonzalez  4 , Jack F Shern  3 , Gregory H Reaman  5
Affiliations

Childhood cancer data initiative: Status report

Subhashini Jagu et al. Pediatr Blood Cancer. 2024 Feb.

Abstract

In March 2023, over 800 researchers, clinicians, patients, survivors, and advocates from the pediatric oncology community met to discuss the progress of the National Cancer Institute's Childhood Cancer Data Initiative. We present here the status of the initiative's efforts in building its data ecosystem and updates on key programs, especially the Molecular Characterization Initiative and the planned Coordinated National Initiative for Rare Cancers in Children and Young Adults. These activities aim to improve access to childhood cancer data, foster collaborations, facilitate integrative data analysis, and expand access to molecular characterization, ultimately leading to the development of innovative therapeutic approaches.

Keywords: Childhood Cancer Data Catalog; Molecular Characterization Initiative; data accessibility; data harmonization; data integration; data sharing.

PubMed Disclaimer

References

REFERENCES

    1. Flores-Toro JA, Jagu S, Armstrong GT, et al. The Childhood Cancer Data Initiative: using the power of data to learn from and improve outcomes for every child and young adult with pediatric cancer. J Clin Oncol. 2023;41:4045-4053. 10.1200/JCO.22.02208
    1. National Cancer Institute. Childhood Cancer Data Initiative Hub. National Cancer Institute. Accessed July 12, 2023. https://ccdi.cancer.gov/home
    1. National Cancer Institute. Childhood Cancer Data Initiative National Childhood Cancer Registry Explorer. National Cancer Institute. Accessed July 12, 2023. https://nccrexplorer.ccdi.cancer.gov/
    1. National Cancer Institute. Childhood Cancer Data Initiative Childhood Cancer Data Catalog. National Cancer Institute. Accessed July 12, 2023. https://datacatalog.ccdi.cancer.gov/
    1. National Cancer Institute. Childhood Cancer Data Initiative Molecular Targets Platform. National Cancer Institute. Accessed July 12, 2023. https://moleculartargets.ccdi.cancer.gov/

LinkOut - more resources