Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Dec 7;23(1):1369.
doi: 10.1186/s12913-023-10347-4.

Forward with Dementia: process evaluation of an Australian campaign to improve post-diagnostic support

Affiliations

Forward with Dementia: process evaluation of an Australian campaign to improve post-diagnostic support

Lee-Fay Low et al. BMC Health Serv Res. .

Abstract

Background: Forward with Dementia is a co-designed campaign to improve communication of dementia diagnosis and post-diagnostic support.

Methods: Webinars, a website, social and traditional media, and promotions through project partners were used to disseminate campaign messages to health and social care professionals (primary audience) and people with dementia and carers (secondary audience). The campaign ran between October 2021 and June 2022, with 3-months follow-up. The RE-AIM framework was used for process evaluation. Measurements included surveys and interviews, a log of activities (e.g. webinars, social media posts) and engagements (e.g. attendees, reactions to posts), and Google Analytics.

Results: There were 29,053 interactions with campaign activities. More than three-quarters of professionals (n = 63/81) thought webinars were very or extremely helpful. Professionals and people with dementia and carers reported that the website provided appropriate content, an approachable tone, and was easy to use. Following campaign engagement, professionals planned to (n = 77/80) or had modified (n = 29/44) how they communicated the diagnosis and/or provided post-diagnostic information and referrals. Qualitative data suggested that the campaign may have led to benefits for some people with dementia and carers.

Conclusions: Forward with Dementia was successful in terms of reach, appropriateness, adoption and maintenance for professionals, however flow-through impacts on people with dementia are not clear. Targeted campaigns can potentially change health professionals' communication and support around chronic diseases such as dementia.

Keywords: Alzheimer’s disease; Dementia; Health care professionals; Post-diagnostic support; Process evaluation.

PubMed Disclaimer

Conflict of interest statement

The authors declare no competing interests.

Figures

Fig. 1
Fig. 1
The Forward with Dementia campaign program logic
Fig. 2
Fig. 2
The Forward with Dementia campaign reach

References

    1. Gauthier S, Webster C, Servaes S, Morais JA, Rosa-Neto P. World Alzheimer Report 2022 Life after diagnosis: Navigating treatment, care and support. London: Alzheimer's Disease International; 2022.
    1. Bamford C, Wheatley A, Brunskill G, Booi L, Allan L, Banerjee S, et al. Key components of post-diagnostic support for people with dementia and their carers: A qualitative study. PLoS ONE. 2021;16(12 December):e0260506. - PMC - PubMed
    1. Low LF, Gresham M, Phillipson L. Further development needed: models of post-diagnostic support for people with dementia. Curr Opin Psychiatry. 2023;36(2):104–111. doi: 10.1097/YCO.0000000000000848. - DOI - PubMed
    1. Low LF. Why Australia urgently needs post-diagnostic support and treatment for dementia. Aust J Dementia Care. 2019;8(6):30–32.
    1. Naismith SL, Michaelian JC, Low LF, Arsenova V, Mehrani I, Fyfe K, et al. Characterising Australian memory clinics: current practice and service needs informing national service guidelines. BMC Geriatr. 2022;22(1):578. doi: 10.1186/s12877-022-03253-7. - DOI - PMC - PubMed