. 2023 Dec 10;13(12):e073884.

doi: 10.1136/bmjopen-2023-073884.

Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)

Tracy Comans¹, Kim Nguyen^{2

3}, Len Gray², Leon Flicker⁴, Paula Williamson⁵, Susanna Dodd⁵, Anna Kearney⁵, Colm Cunningham^{6

7}, Thomas Morris^{6

8}, Jack Nunn^{9

10}, Dominic Trepel³, Osvaldo P Almeida⁴, Danelle Kenny^{2

11}, Alyssa Welch², Judy A Lowthian^{12

13}, John Quinn^{2

14}, Glenys Petrie^{2

14}, Tiet-Hanh Dao-Tran², Asmita Manchha¹⁵, Susan E Kurrle⁶

Affiliations

¹ Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia t.comans@uq.edu.au.
² Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia.
³ Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland.
⁴ WA Centre for Health and Ageing, The University of Western Australia, Perth, Western Australia, Australia.
⁵ Department of Health and Data Science, University of Liverpool, Liverpool, UK.
⁶ School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
⁷ HammondCare International, London, UK.
⁸ HammondCare, Sydney, New South Wales, Australia.
⁹ Science for All, Melbourne, Victoria, Australia.
¹⁰ La Trobe University, Melbourne, Victoria, Australia.
¹¹ Faculty of Health and Behavioural Sciences, The University of Queensland, Brisbane, Queensland, Australia.
¹² Bolton Clarke Research Institute, Bolton Clarke, Brisbane, Queensland, Australia.
¹³ School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
¹⁴ Wynnum Manly Dementia Alliance, Brisbane, Queensland, Australia.
¹⁵ Bolton Clarke Research Institute, Brisbane, Queensland, Australia.

PMID: 38072498
PMCID: PMC10729031
DOI: 10.1136/bmjopen-2023-073884

Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)

Tracy Comans et al. BMJ Open. 2023.

. 2023 Dec 10;13(12):e073884.

doi: 10.1136/bmjopen-2023-073884.

Authors

Affiliations

¹ Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia t.comans@uq.edu.au.
² Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia.
³ Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland.
⁴ WA Centre for Health and Ageing, The University of Western Australia, Perth, Western Australia, Australia.
⁵ Department of Health and Data Science, University of Liverpool, Liverpool, UK.
⁶ School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
⁷ HammondCare International, London, UK.
⁸ HammondCare, Sydney, New South Wales, Australia.
⁹ Science for All, Melbourne, Victoria, Australia.
¹⁰ La Trobe University, Melbourne, Victoria, Australia.
¹¹ Faculty of Health and Behavioural Sciences, The University of Queensland, Brisbane, Queensland, Australia.
¹² Bolton Clarke Research Institute, Bolton Clarke, Brisbane, Queensland, Australia.
¹³ School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
¹⁴ Wynnum Manly Dementia Alliance, Brisbane, Queensland, Australia.
¹⁵ Bolton Clarke Research Institute, Brisbane, Queensland, Australia.

PMID: 38072498
PMCID: PMC10729031
DOI: 10.1136/bmjopen-2023-073884

Abstract

Introduction: The Core Outcome Measures for Improving Care (COM-IC) project aims to deliver practical recommendations on the selection and implementation of a suite of core outcomes to measure the effectiveness of interventions for dementia care.

Methods and analysis: COM-IC embeds a participatory action approach to using the Alignment-Harmonisation-Results framework for measuring dementia care in Australia. Using this framework, suitable core outcome measures will be identified, analysed, implemented and audited. The methods for analysing each stage will be codesigned with stakeholders, through the conduit of a Stakeholder Reference Group including people living with dementia, formal and informal carers, aged care industry representatives, researchers, clinicians and policy actors. The codesigned evaluation methods consider two key factors: feasibility and acceptability. These considerations will be tested during a 6-month feasibility study embedded in aged care industry partner organisations.

Ethics and dissemination: COM-IC has received ethical approval from The University of Queensland (HREC 2021/HE001932). Results will be disseminated through networks established over the project, and in accordance with both the publication schedule and requests from the Stakeholder Reference Group. Full access to publications and reports will be made available through UQ eSpace (https://espace.library.uq.edu.au/), an open access repository hosted by The University of Queensland.

Keywords: Dementia; Feasibility Studies; Health Services for the Aged; Quality in health care.

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Conflict of interest statement

Competing interests: JN is the volunteer director of the registered charity ‘Science for All’ and is paid as an individual by the charity for his work on this MRFF-funded project by written agreement. Science for All will receive funding through the COM-IC MRFF grant to conduct elements of the research programme. All funding is reported annually through the Australian Charities and Not-for-profits Commission (ACNC).

Figures

**Figure 1**
Alignment–Harmonisation–Results (AHR) framework.

See this image and copyright information in PMC

References

1. World health Organization (WHO). 2022. Available: https://www.who.int/publications/i/item/9789240058248
1. Lord K, Beresford-Dent J, Rapaport P, et al. . Developing the new interventions for independence in dementia study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and randomised controlled trial evidence. Soc Psychiatry Psychiatr Epidemiol 2020;55:1–14. 10.1007/s00127-019-01784-w - DOI - PubMed
1. Williamson PR, Altman DG, Bagley H, et al. . The COMET Handbook: version 1.0. Trials 2017;18:280. 10.1186/s13063-017-1978-4 - DOI - PMC - PubMed
1. Dodd S, Harman N, Taske N, et al. . Core outcome SETS through the healthcare ecosystem: the case of type 2 diabetes mellitus. Trials 2020;21:570. 10.1186/s13063-020-04403-1 - DOI - PMC - PubMed
1. Tran A, Nguyen K-H, Gray L, et al. . A systematic literature review of efficiency measurement in nursing homes. Int J Environ Res Public Health 2019;16:2186. 10.3390/ijerph16122186 - DOI - PMC - PubMed

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Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)

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Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)

Authors

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Abstract

Conflict of interest statement

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