Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2023 Dec 5:5:1251016.
doi: 10.3389/fdgth.2023.1251016. eCollection 2023.

Qualitative analysis of mental health conversational agents messages about autism spectrum disorder: a call for action

Affiliations

Qualitative analysis of mental health conversational agents messages about autism spectrum disorder: a call for action

S Aghakhani et al. Front Digit Health. .

Abstract

Background: Conversational agents (CA's) have shown promise in increasing accessibility to mental health resources. This study aimed to identify common themes of messages sent to a mental health CA (Wysa) related to ASD by general users and users that identify as having ASD.

Methods: This study utilized retrospective data. Two thematic analyses were conducted, one focusing on user messages including the keywords (e.g., ASD, autism, Asperger), and the second one with messages from users who self-identified as having ASD.

Results: For the sample of general users, the most frequent themes were "others having ASD," "ASD diagnosis," and "seeking help." For the users that self-identified as having ASD (n = 277), the most frequent themes were "ASD diagnosis or symptoms," "negative reaction from others," and "positive comments." There were 3,725 emotion words mentioned by users who self-identified as having ASD. The majority had negative valence (80.3%), and few were positive (14.8%) or ambivalent (4.9%).

Conclusion: Users shared their experiences and emotions surrounding ASD with a mental health CA. Users asked about the ASD diagnosis, sought help, and reported negative reactions from others. CA's have the potential to become a source of support for those interested in ASD and/or identify as having ASD.

Keywords: autism spectrum disorder; chatbots; digital interventions; digital mental health; technology.

PubMed Disclaimer

Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Figures

Figure 1
Figure 1
Screening process of messages mentioning words related to autism spectrum disorder.
Figure 2
Figure 2
Frequency of emotion words by valance, themes, and single words.

References

    1. Maenner MJ, Shaw KA, Baio J, Washington A, Patrick M, DiRienzo M, et al. Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveill Summ. (2020) 69(4):1–12. 10.15585/mmwr.ss6904a1 - DOI - PMC - PubMed
    1. Salari N, Rasoulpoor S, Rasoulpoor S, Shohaimi S, Jafarpour S, Abdoli N, et al. The global prevalence of autism spectrum disorder: a comprehensive systematic review and meta-analysis. Ital J Pediatr. (2022) 48(1):112. 10.1186/s13052-022-01310-w - DOI - PMC - PubMed
    1. Grzadzinski R, Huerta M, Lord C. DSM-5 and autism spectrum disorders (ASDs): an opportunity for identifying ASD subtypes. Mol Autism. (2013) 4(1):1–6. 10.1186/2040-2392-4-12 - DOI - PMC - PubMed
    1. Lord C, Bishop SL. Recent advances in autism research as reflected in DSM-5 criteria for autism spectrum disorder. Annu Rev Clin Psychol. (2015) 11(1):53–70. 10.1146/annurev-clinpsy-032814-112745 - DOI - PubMed
    1. Camm-Crosbie L, Bradley L, Shaw R, Baron-Cohen S, Cassidy S. ‘People like me don’t get support’: autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism. (2019) 23(6):1431–41. 10.1177/1362361318816053 - DOI - PMC - PubMed