The importance of going beyond consumer or patient involvement to lived experience leadership

Brett Scholz¹, Stephanie Stewart², Aron Pamoso^{1

3}, Sarah Gordon⁴, Brenda Happell^{5

6}, Bagus Utomo⁷

Affiliations

¹ School of Medicine and Psychology, The Australian National University, Canberra, Australian Capital Territory, Australia.
² Melbourne School of Psychological Sciences, University of Melboune, Parkville, Victoria, Australia.
³ Department of Psychology, University of San Carlos, Cebu, Philippines.
⁴ Department of Psychological Medicine, University of Otago, Wellington, New Zealand.
⁵ Faculty of Health, Southern Cross University, East Lismore, New South Wales, Australia.
⁶ Catherine McAuley School of Nursing and Midwifery, University College Cork, Cork, Ireland.
⁷ Komunitas Peduli Skizofrenia Indonesia, Jakarta, Indonesia.

Editorial

Brett Scholz et al. Int J Ment Health Nurs. 2024 Feb.

. 2024 Feb;33(1):1-4.

doi: 10.1111/inm.13282. Epub 2023 Dec 22.

Brett Scholz¹, Stephanie Stewart², Aron Pamoso^{1

3}, Sarah Gordon⁴, Brenda Happell^{5

6}, Bagus Utomo⁷

¹ School of Medicine and Psychology, The Australian National University, Canberra, Australian Capital Territory, Australia.
² Melbourne School of Psychological Sciences, University of Melboune, Parkville, Victoria, Australia.
³ Department of Psychology, University of San Carlos, Cebu, Philippines.
⁴ Department of Psychological Medicine, University of Otago, Wellington, New Zealand.
⁵ Faculty of Health, Southern Cross University, East Lismore, New South Wales, Australia.
⁶ Catherine McAuley School of Nursing and Midwifery, University College Cork, Cork, Ireland.
⁷ Komunitas Peduli Skizofrenia Indonesia, Jakarta, Indonesia.

No abstract available

References

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1. Beresford, P. (2020) PPI or user involvement: taking stock from a service user perspective in the twenty first century. Research Involvement and Engagement, 6(36), 36. Available from: https://doi.org/10.1186/s40900-020-00211-8
1. Bromley, E., Mikesell, L. & Khodyakov, D. (2017) Ethics and science in the participatory era: a vignette-based delphi study. Journal of Empirical Research on Human Research Ethics, 12(5), 295-309. Available from: https://doi.org/10.1177/1556264617717828
1. Cochrane. (2022) Cochrane Consumer Engagement and Involvement Framework to 2027. https://consumers.cochrane.org/news/cochrane-consumer-engagement-and-inv...
1. Daya, I. (2020) The participation ladder: A consumer/survivor lens. http://www.indigodaya.com/wpcf7_captcha/2020/10/Participation-ladder_con...