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. 2024 Jul;66(7):931-938.
doi: 10.1111/dmcn.15822. Epub 2023 Dec 22.

Environment-based approaches to improve participation of young people with physical disabilities during COVID-19

Dana R Anaby  1 , Lisa Avery  2   3 , Robert J Palisano  4 , Mindy F Levin  1 , Pranamika Khayargoli  1 , Yu-Hsin Hsieh  1 , Jan Willem Gorter  5   6 , Rachel Teplicky  5 ; BEYOND Consultant Team
Collaborators, Affiliations
Free article

Environment-based approaches to improve participation of young people with physical disabilities during COVID-19

Dana R Anaby et al. Dev Med Child Neurol. 2024 Jul.
Free article

Abstract

Aim: To examine the effects of the Pathways and Resources for Engagement and Participation (PREP) intervention during the COVID-19 pandemic on (1) activity performance and satisfaction, and (2) motor, cognitive, and affective body functions.

Method: An interrupted time-series design with multiple baselines across 21 young people (13 females, eight males) aged 16 to 25 years (median = 21 years 5 months) with physical disabilities was employed. The young people engaged in an 8-week self-chosen leisure activity (e.g. football, piano, photography) at their home or community. The Canadian Occupational Performance Measure (COPM) assessed activity performance and satisfaction weekly. Mental health problems, including affective and cognitive outcomes, were assessed weekly using the Behavior Assessment System for Children, Third Edition. Motor functions (e.g. trunk control, reaching, strength) were assessed biweekly. Linear mixed-effects models were used.

Results: The intervention had large effects on activity performance (0.78) and satisfaction (0.88) with clinically significant change in COPM scores (2.6 [95% confidence interval {CI}: 2.0-3.2] and 3.2 points [95% CI: 2.4-3.9] respectively). Young people without mental health problems at baseline benefited more from the intervention (p = 0.028). Improvements in at least one domain of body function occurred in 10 young people especially for motor outcomes.

Interpretation: Results demonstrate the effectiveness of PREP during adverse times and suggest benefits going beyond participation, involving outcomes at the body-function level.

What this paper adds: Environmental-based interventions can improve participation even during adverse times such as the COVID-19 pandemic. Significant improvement with large effect sizes occurred in both activity performance and satisfaction. Intervention was effective for all; those without mental health problems benefited more. Improvements in body-function outcomes were partially observed, especially in motor-related outcomes. Body functions may improve through participation even if not targeted by the intervention.

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References

REFERENCES

    1. Engel‐Yeger B, Jarus T, Anaby D, Law M. Differences in Patterns of Participation Between Youths With Cerebral Palsy and Typically Developing Peers. Am J Occup Ther. 2009;63(1):96–104.
    1. Downs JA‐O, Blackmore AA‐O, Epstein A, Skoss R, Langdon K, Jacoby P, et al. The prevalence of mental health disorders and symptoms in children and adolescents with cerebral palsy: a systematic review and meta‐analysis. Dev Med Child Neurol. 2018;60(1):30–8.
    1. Jesus TS, Bhattacharjya S, Papadimitriou C, Bogdanova Y, Bentley J, Arango‐Lasprilla JC, et al. Lockdown‐Related Disparities Experienced by People with Disabilities during the First Wave of the COVID‐19 Pandemic: Scoping Review with Thematic Analysis. International Journal of Environmental Research and Public Health [Internet]. 2021; 18(12).
    1. Varengue R, Brochard S, Bouvier S, Bailly R, Houx L, Lempereur M, et al. Perceived impact of lockdown on daily life in children with physical disabilities and their families during the COVID‐19 pandemic. Child Care Health Dev. 2022;48(6):942–55.
    1. Augustine L, Lygnegård F, Granlund M. Trajectories of participation, mental health, and mental health problems in adolescents with self‐reported neurodevelopmental disorders. Disabil Rehabil. 2022;44(9):1595–608.

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