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. 2024 Jun 1;17(6):dmm050672.
doi: 10.1242/dmm.050672. Epub 2024 Jan 25.

Cross-border rare disease advocacy: Preethi Krishnaraj interviews Harsha Rajasimha

Preethi Krishnaraj  1 , Harsha K Rajasimha  2   3   4
Affiliations

Cross-border rare disease advocacy: Preethi Krishnaraj interviews Harsha Rajasimha

Preethi Krishnaraj et al. Dis Model Mech. .
No abstract available

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Figures

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Preethi Krishnaraj (left) and Harsha Rajasimha (right)
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‘Living rare with confidence’. A self-portrait of Ms Wheelchair California 2022, Deborah Vick, for ART4RARE, a global rare-disease day art competition, organized by IndoUSrare. This image is courtesy of IndoUSrare. Copyright 2024. All rights reserved. This image is not published under the CC-BY license of the article.
See this image and copyright information in PMC

References

    1. Haendel, M., Vasilevsky, N., Unni, D., Bologa, C., Harris, N., Rehm, H., Hamosh, A., Baynam, G., Groza, T., McMurry, J.et al. (2020). How many rare diseases are there? Nat. Rev. Drug Discov. 19, 77-78. 10.1038/d41573-019-00180-y - DOI - PMC - PubMed
    1. Khera, H. K., Venugopal, N., Karur, R. T., Mishra, R., Kartha, R. V. and Rajasimha, H. K. (2022). Building cross-border collaborations to increase diversity and accelerate rare disease drug development - meeting report from the inaugural IndoUSrare Annual Conference 2021. Ther. Adv. Rare Dis. 3. 10.1177/26330040221133124 - DOI - PMC - PubMed
    1. Nguengang Wakap, S., Lambert, D. M., Olry, A., Rodwell, C., Gueydan, C., Lanneau, V., Murphy, D., Le Cam, Y. and Rath, A. (2020). Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. Eur. J. Hum. Genet. 28, 165-173. 10.1038/s41431-019-0508-0 - DOI - PMC - PubMed
    1. Rajasimha, H. K., Shirol, P. B., Ramamoorthy, P., Hegde, M., Barde, S., Chandru, V., Ravinandan, M. E., Ramachandran, R., Haldar, K., Lin, J. C.et al. (2014). Organization for Rare Diseases India (ORDI) – addressing the challenges and opportunities for the indian rare diseases’ community. Genetics Research 96, e009. 10.1017/S0016672314000111 - DOI - PMC - PubMed

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