Review

. 2024 Jan 31;111(2):znae019.

doi: 10.1093/bjs/znae019.

The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Isabel C Hageman^{1

2}, Paola Midrio³, Hendrik J J van der Steeg¹, Ekkehart Jenetzky^{4

5}, Barbara D Iacobelli⁶, Anna Morandi⁷, Cornelius E J Sloots⁸, Eberhard Schmiedeke⁹, Paul M A Broens¹⁰, Francesco Fascetti Leon¹¹, Yusuf H Çavuşoğlu¹², Ramon R Gorter^{13

14

15}, Misel Trajanovska^{2

16}, Sebastian K King^{2

16

17}, Dalia Aminoff¹⁸, Nicole Schwarzer¹⁹, Michel Haanen²⁰, Ivo de Blaauw¹, Iris A L M van Rooij²¹; ARM-Net Consortium

Collaborators, Affiliations

Collaborators

ARM-Net Consortium:
Eva Amerstorfer, Holger Till, Piero Bagolan, Stefan Deluggi, Emre Divarci, María Fanjul, Araceli García Vázquez, Carlos Giné, Jan Gosemann, Martin Lacher, Caterina Grano, Sabine Grasshoff-Derr, Stefano Giuliani, Stefan Holland-Cunz, Wilfried Krois, Ernesto Leva, Granda Ospedale Maggiore Policlinico, Judith Lindert, Gabriele Lisi, Johanna Ludwiczek, Igor Makedonsky, Carlo Marcelis, Chris Verhaak, Marc Miserez, Mazeena Mohideen, Alessio Pini Prato, Lucie Poš, Richard Škába, Carlos Reck-Burneo, Heiko Reutter, Stephan Rohleder, Inbal Samuk, Nagoud Schukfeh, Pernilla Stenström, Alejandra Vilanova-Sánchez, Patrick Volk, Marieke Witvliet

Affiliations

¹ Department of Pediatric Surgery, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands.
² Surgical Research, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
³ Pediatric Surgery Unit, Cà Foncello Hospital, Treviso, Italy.
⁴ Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center of Johannes Gutenberg-University, Mainz, Germany.
⁵ Department of Medicine, Faculty of Health, Witten/Herdecke University, Witten, Germany.
⁶ Medical and Surgical Department of the Fetus-Newborn-Infant, Ospedale Bambin Gesù, Rome, Italy.
⁷ Department of Pediatric Surgery, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy.
⁸ Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, The Netherlands.
⁹ Department of Pediatric Surgery and Urology, Centre for Child and Youth Health, Klinikum Bremen-Mitte, Bremen, Germany.
¹⁰ Department of Surgery, Division of Pediatric Surgery, University Medical Center Groningen, Groningen, The Netherlands.
¹¹ Pediatric Surgery Unit, University Hospital, Padua, Italy.
¹² Department of Pediatric Surgery, Gazi University Faculty of Medicine, Ankara, Turkey.
¹³ Department of Pediatric Surgery, Emma Children's Hospital Amsterdam UMC, Location University of Amsterdam, Amsterdam, The Netherlands.
¹⁴ Amsterdam Gastroenterology and Metabolism Research Institute, Amsterdam, The Netherlands.
¹⁵ Amsterdam Reproduction and Development Research Institute, Amsterdam, The Netherlands.
¹⁶ Department of Paediatrics, University of Melbourne, Melbourne, Australia.
¹⁷ Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Victoria, Australia.
¹⁸ AIMAR-Associazione Italiana Malformazioni AnoRettali, Rome, Italy.
¹⁹ SOMA-Selfhelp Organization for People with Anorectal Malformations e.V., Munich, Germany.
²⁰ VA-Dutch Patient Organization for Anorectal Malformations, Huizen, The Netherlands.
²¹ Department for Health Evidence, Radboudumc, Nijmegen, The Netherlands.

PMID: 38364059
PMCID: PMC10870250
DOI: 10.1093/bjs/znae019

Review

The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Isabel C Hageman et al. Br J Surg. 2024.

. 2024 Jan 31;111(2):znae019.

doi: 10.1093/bjs/znae019.

Authors

Collaborators

ARM-Net Consortium:
Eva Amerstorfer, Holger Till, Piero Bagolan, Stefan Deluggi, Emre Divarci, María Fanjul, Araceli García Vázquez, Carlos Giné, Jan Gosemann, Martin Lacher, Caterina Grano, Sabine Grasshoff-Derr, Stefano Giuliani, Stefan Holland-Cunz, Wilfried Krois, Ernesto Leva, Granda Ospedale Maggiore Policlinico, Judith Lindert, Gabriele Lisi, Johanna Ludwiczek, Igor Makedonsky, Carlo Marcelis, Chris Verhaak, Marc Miserez, Mazeena Mohideen, Alessio Pini Prato, Lucie Poš, Richard Škába, Carlos Reck-Burneo, Heiko Reutter, Stephan Rohleder, Inbal Samuk, Nagoud Schukfeh, Pernilla Stenström, Alejandra Vilanova-Sánchez, Patrick Volk, Marieke Witvliet

Affiliations

¹ Department of Pediatric Surgery, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands.
² Surgical Research, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
³ Pediatric Surgery Unit, Cà Foncello Hospital, Treviso, Italy.
⁴ Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center of Johannes Gutenberg-University, Mainz, Germany.
⁵ Department of Medicine, Faculty of Health, Witten/Herdecke University, Witten, Germany.
⁶ Medical and Surgical Department of the Fetus-Newborn-Infant, Ospedale Bambin Gesù, Rome, Italy.
⁷ Department of Pediatric Surgery, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy.
⁸ Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, The Netherlands.
⁹ Department of Pediatric Surgery and Urology, Centre for Child and Youth Health, Klinikum Bremen-Mitte, Bremen, Germany.
¹⁰ Department of Surgery, Division of Pediatric Surgery, University Medical Center Groningen, Groningen, The Netherlands.
¹¹ Pediatric Surgery Unit, University Hospital, Padua, Italy.
¹² Department of Pediatric Surgery, Gazi University Faculty of Medicine, Ankara, Turkey.
¹³ Department of Pediatric Surgery, Emma Children's Hospital Amsterdam UMC, Location University of Amsterdam, Amsterdam, The Netherlands.
¹⁴ Amsterdam Gastroenterology and Metabolism Research Institute, Amsterdam, The Netherlands.
¹⁵ Amsterdam Reproduction and Development Research Institute, Amsterdam, The Netherlands.
¹⁶ Department of Paediatrics, University of Melbourne, Melbourne, Australia.
¹⁷ Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Victoria, Australia.
¹⁸ AIMAR-Associazione Italiana Malformazioni AnoRettali, Rome, Italy.
¹⁹ SOMA-Selfhelp Organization for People with Anorectal Malformations e.V., Munich, Germany.
²⁰ VA-Dutch Patient Organization for Anorectal Malformations, Huizen, The Netherlands.
²¹ Department for Health Evidence, Radboudumc, Nijmegen, The Netherlands.

PMID: 38364059
PMCID: PMC10870250
DOI: 10.1093/bjs/znae019

No abstract available

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Figures

**Fig. 1**
ARM patients in the ARM-Net registry per country (N)

See this image and copyright information in PMC

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References

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1. Cuschieri A. Descriptive epidemiology of isolated anal anomalies: a survey of 4.6 million births in Europe. Am J Med Genet 2001;103:207–215 - PubMed
1. Jenetzky E. Prevalence estimation of anorectal malformations using German diagnosis related groups system. Pediatr Surg Int 2007;23:1161–1165 - PubMed
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The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Collaborators

Affiliations

The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Authors

Collaborators

Affiliations

Figures

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References

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