Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Comment
. 2024 Mar;24(3):106-108.
doi: 10.1080/15265161.2024.2303152. Epub 2024 Feb 23.

Downstream Exclusion in Rural Rare Disease Precision Medicine Research

Cassandra Barrett  1 , Courtney Berrios  1   2
Affiliations
Comment

Downstream Exclusion in Rural Rare Disease Precision Medicine Research

Cassandra Barrett et al. Am J Bioeth. 2024 Mar.
No abstract available

PubMed Disclaimer

Conflict of interest statement

Disclosure Statement

The authors report there are no competing interests to declare.

Comment on

References

    1. Berrios C, McBeth M, Bradley-Ewing A, Schuetz N, Campbell A, Talebizadeh Z, Garrett J, Falicov T, Martinez F, Rare Voices Advisory Group, and E. A. Hurley. Forthcoming. Developing a community-led rare disease ELSI research agenda. Orphanet Journal of Rare Diseases. - PMC - PubMed
    1. Cyr ME, Etchin AG, Guthrie BJ, and Benneyan JC. 2019. Access to specialty healthcare in urban versus rural US populations: a systematic literature review.”BMC Health Services Research 19(1):1–17. - PMC - PubMed
    1. ERS (Economic Research Service). United States Department of Agriculture. State Fact Sheets. Accessed December 7, 2023. https://data.ers.usda.gov/reports.aspx?ID=17854.
    1. Kane NJ, Cohen ASA, Berrios C, Jones B, Pastinen T, Hoffman MA. 2023. Committing to genomic answers for all kids: evaluating inequity in genomic research enrollment. Genetics in Medicine. 25(9):100895. - PMC - PubMed
    1. RHIHub (Rural Health Information Hub). Healthcare Professional Shortage Areas: Primary Care, by County, 2023. Accessed. December 7, 2023. https://www.ruralhealthinfo.org/charts/5.

LinkOut - more resources