The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults
- PMID: 38470531
- PMCID: PMC11933200
- DOI: 10.1007/s10803-024-06297-3
The Social Validity of Behavioral Interventions: Seeking Input from Autistic Adults
Abstract
Many in the autistic community have expressed concerns regarding the use of behavioral interventions with autistic children, suggesting that these interventions may not be socially valid. Though behavioral interventions have evolved to be more naturalistic and child-centered, little structured research has been done to explicitly seek autistic perspectives on the acceptability of specific components of behavioral interventions. Autistic adults (N = 235) were recruited online to take the Autism Intervention Attitudes Scale (AIAS), a questionnaire designed to gather feedback on common intervention goals and practices. Results indicate that participants find goals and practices that highlight quality of life, safety, and autistic interactions acceptable, while those that focus on normalization based on neurotypical standards are not. An exploratory graph analysis revealed three communities of goals ("uncontroversial goals", "controversial goals", and "social goals"). Comparison between naturalistic and structured intervention components additionally showed that autistic participants favored naturalistic strategies. These findings are in line with known criticisms of behavioral intervention from autistic adults, but also provide more information on the specific ways in which behavioral interventions can be reformed. This information can guide professionals in the development of appropriate goals and decisions around intervention planning.
Keywords: Autistic adults; Behavioral interventions; Naturalistic developmental behavioral intervention; Social validity.
© 2024. The Author(s).
Conflict of interest statement
Declarations. While none of the authors expects to directly profit from publication of this paper, we aim to be maximally transparent in our potential conflicts of interest as suggested by Bottema-Beutal and colleagues (2021). RKS and KMPB are both certified in Pivotal Response Treatment and have worked as graduate student clinicians at a university autism center that provides PRT. KMPB is also a board certified behavior analyst who provides training at a community agency. PD and ZJW both serve on the ANSWER (autistic researcher) committee of the Autism Intervention Research Network on Physical Health (AIR-P), and ZJW is a member of the family advisory committee of the Autism Speaks Autism Care Network Vanderbilt site. ZJW also serves as a consultant for Roche on multiple projects related to autism intervention and clinical trials.
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