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. 2023 Nov 4;6(3):539-543.
doi: 10.1016/j.cjco.2023.11.002. eCollection 2024 Mar.

Patient Involvement in Care, Psychosocial Outcomes, and Quality of Life in Hypertrophic Cardiomyopathy: A Pilot Study

Braeden Hill  1 , Nicholas Grubic  1   2 , Kiera Liblik  1 , Amer M Johri  1
Affiliations

Patient Involvement in Care, Psychosocial Outcomes, and Quality of Life in Hypertrophic Cardiomyopathy: A Pilot Study

Braeden Hill et al. CJC Open. .

Abstract
in English, French

This cross-sectional study evaluated the impact of patient involvement in care (PIC) on psychosocial outcomes and health-related quality of life (HRQoL) in patients with hypertrophic cardiomyopathy (HCM) (n = 34). Patients with low-to-moderate PIC were older than those with high PIC (66.8 years vs 57.3 years; P = 0.04). PIC was negatively correlated with depressive symptoms (r = -0.39; P = 0.02) and positively correlated with heart-focused attention (r = 0.39; P = 0.02). No significant correlations were observed between PIC and HRQoL. Greater PIC was associated with reduced depressive symptoms but increased cardiac anxiety. Future studies should investigate the relationship between PIC and HRQoL in a larger cohort.

Cette étude transversale visait à évaluer l’effet de la participation du patient à ses soins sur les issues psychosociales et la qualité de vie liée à la santé chez les patients atteints de cardiomyopathie hypertrophique (CMH) (n = 34). Les patients qui participaient peu ou modérément à leurs soins étaient plus âgés que ceux qui y participaient activement (66,8 ans vs 57,3 ans; p = 0,04). Il y a une corrélation négative entre la participation du patient aux soins et les symptômes dépressifs (r = -0,39; p = 0,02) et une corrélation positive entre la participation aux soins et l’attention portée au cœur (r = 0,39; p = 0,02). Aucune corrélation notable n’a été observée entre la participation du patient à ses soins et la qualité de vie liée à la santé. Une grande participation du patient à ses soins a été associée à une réduction des symptômes dépressifs, mais à une anxiété cardiaque accrue. D’autres études sont nécessaires pour examiner la relation entre la participation du patient à ses soins et la qualité de vie liée à la santé au sein d’une cohorte plus importante.

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Figures

Figure 1
Figure 1
Pearson correlation plots depicting linear correlations between continuous Modified-Perceived Involvement in Care Scale (M-PICS) summary score and psychosocial and health-related quality-of-life scale scores. CAQ, Cardiac Anxiety Questionnaire; CAQ-AVOID, Avoidance Subscale of CAQ; CAQ-FEAR, Fear subscale of CAQ; CAQ-HFA, Heart-Focused Attention subscale of CAQ; CAQ-SUM, Summary score of CAQ; HADS-A, Anxiety subsection of Hospital Anxiety and Depression scale; HADS-D, Depression subsection of Hospital Anxiety and Depression scale; KCCQ12, 12-item Kansas City Cardiomyopathy Questionnaire; KCCQ12-PL, Physical Limitation subscale of KCCQ12; KCCQ12-QL, Quality-of-Life subscale of KCCQ12; KCCQ12-SF, Symptom Frequency subscale of KCCQ12; KCCQ12-SL, Social Limitation subscale of KCCQ12; KCCQ12-SUM, Summary score of KCCQ12. ∗Statistically significant correlation.
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