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. 2024 Mar 20:5:1372919.
doi: 10.3389/falgy.2024.1372919. eCollection 2024.

Nasal polyp syndrome: a patient-centred term for CRSwNP by EUFOREA

T Teeling  1 , C Djouder  1 , H Laurens  1 , J H Preyra  1 , C M E Shire  1 , E Van Staeyen  2 , D M Conti  2   3 , G K Scadding  4   5 , P W Hellings  6   7   8
Affiliations

Nasal polyp syndrome: a patient-centred term for CRSwNP by EUFOREA

T Teeling et al. Front Allergy. .

Abstract

Chronic Rhinosinusitis with Nasal Polyps (CRSwNP) is a chronic inflammatory disease of the nose and paranasal sinus cavities that significantly affects well-being and social function, particularly in young adults and middle-aged populations. CRSwNP is a common health condition in the Western world, with an estimated prevalence of 3%. Despite worldwide evidence-based treatment guidelines such as the European Position Paper on Rhinosinusitis and Nasal Polyps (EPOS) 2020 and the European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA) chronic rhinosinusitis (CRS) pocket guide, a significant number of patients remain undiagnosed and/or uncontrolled with repeated oral corticosteroids (OCS) treatments and/or (multiple) endoscopic sinus surgeries (ESS).

Keywords: CRSwNP; EUFOREA; Nasal Polyp Syndrome; global CRSwNP awareness day; lay language; patient advisory board; patient-provider communications.

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Conflict of interest statement

DMC: Serves as academic manager at the European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA) and as review editor at Frontiers in Allergy, rhinology section. GKS: Honoraria for articles, speaker and advisory boards: ALK, Bayer, GlaxoSmithKline, Haleon, Noucor, Sanofi-Regeneron, and Viatris. Chair of BSACI rhinitis guidelines, Scientific Chief Editor, Rhinology Section of Frontiers in Allergy, Board member and AR lead for EUFOREA, and Chair/member Data Monitoring Committees on SLIT for ALK. MM: Honoraria for speaker and advisory boards: Sanofi, Glenmark, P&G, Immunotek, Cipla, Thermo-Scientific, Lancet laboratories. EUFOREA expert panel member. PWH: Is recipient of consultancy/lecture fees or unrestricted research grants from Sanofi/Regeneron, Novartis, GSK, Medtronic and Viatris. The remaining authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Figures

Figure 1
Figure 1
(A) Group picture of debate at the first annual Global Chronic Rhinosinusitis with Nasal Polyps (CRSwNP) awareness day 2022. (B) EUFOREA Innovation Forum debate on the need for a lay language term to improve patient-provider communications.
Figure 2
Figure 2
Lay language terms proposed by the EUFOREA patient advisory board along with poll results for preferred term.
Figure 3
Figure 3
EUFOREA chronic rhinosinusitis treatment algorithm.
See this image and copyright information in PMC

References

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