The Experts Speak: Challenges in Banking Brain Tissue for Research

A Rush^{1

2}, C Weil³, L Siminoff⁴, C Griffin^{5

6

7}, C L Paul^{5

6

7}, A Mahadevan⁸, G Sutherland⁹

Affiliations

¹ Menzies Centre for Health Policy and Economics, The University of Sydney, Sydney, Australia.
² Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
³ Independent Consultant, Human Research Protections and Bioethics, Bethesda, USA.
⁴ College of Public Health, Department of Social and Behavioral Sciences, Temple University, Pennsylvania, USA.
⁵ College of Health, Medicine and Wellbeing University of Newcastle, Newcastle, Australia.
⁶ Hunter Medical Research Institute, Newcastle, Australia.
⁷ Mark Hughes Foundation Centre for Brain Cancer Research, The University of Newcastle, Newcastle, Australia.
⁸ Department of Neuropathology, National Institute of Mental Health & Neurosciences (NIMHANS), Bangalore, India.
⁹ Charles Perkins Centre and School of Medical Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.

A Rush et al. Biopreserv Biobank. 2024 Apr.

. 2024 Apr;22(2):179-184.

doi: 10.1089/bio.2024.29135.ajr.

A Rush^{1

2}, C Weil³, L Siminoff⁴, C Griffin^{5

6

7}, C L Paul^{5

6

7}, A Mahadevan⁸, G Sutherland⁹

¹ Menzies Centre for Health Policy and Economics, The University of Sydney, Sydney, Australia.
² Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
³ Independent Consultant, Human Research Protections and Bioethics, Bethesda, USA.
⁴ College of Public Health, Department of Social and Behavioral Sciences, Temple University, Pennsylvania, USA.
⁵ College of Health, Medicine and Wellbeing University of Newcastle, Newcastle, Australia.
⁶ Hunter Medical Research Institute, Newcastle, Australia.
⁷ Mark Hughes Foundation Centre for Brain Cancer Research, The University of Newcastle, Newcastle, Australia.
⁸ Department of Neuropathology, National Institute of Mental Health & Neurosciences (NIMHANS), Bangalore, India.
⁹ Charles Perkins Centre and School of Medical Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.

No abstract available

References

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1. Siminoff LA, Mash D, Wilson-Genderson M, et al. . Making a family decision to donate the brain for genomic research: Lessons from the genotype-tissue expression project (GTEx). Cell Tissue Bank 2021;22(3):431–441; doi: 10.1007/s10561-020-09890-9 - DOI - PMC - PubMed
1. Eatough V, Shaw K, Lees A. Banking on brains: Insights of brain donor relatives and friends from an experiential perspective. Psychol Health 2012;27(11):1271–1290. - PubMed
1. Millar T, Walker R, Arango J-C, et al. . Tissue and organ donation for research in forensic pathology: The MRC Sudden Death Brain and Tissue Bank. J Pathol 2007;213(4):369–375. - PubMed
1. National Ethical Guidelines for Biomedical and Health Research Involving Human Participants. 2017. Available from: https://ethics.ncdirindia.org/asset/pdf/ICMR_National_Ethical_Guidelines... [Last accessed: March 12, 2024].