Long-term follow-up of children with sickle cell disease diagnosed by newborn screening in the Netherlands: Overview of morbidity and mortality

Affiliations

¹ Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
² Center for Benign Hematology, Thrombosis and Hemostasis-Van Creveldkliniek, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, the Netherlands.
³ Department of Epidemiology and Data Science, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
⁴ Department of Pediatric Hematology, Amalia Children's Hospital, Radboud University Nijmegen Medical Center, Nijmegen, the Netherlands.
⁵ Department of Pediatric Hematology, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, the Netherlands.
⁶ Department of Pediatric Hematology and Stem Cell Transplantation Unit, Willem-Alexander Children's Hospital, Leiden University Medical Center, Leiden, the Netherlands.
⁷ Department of Pediatric Hematology, Mosakids Children's Hospital, Maastricht UMC+, Maastricht, the Netherlands.
⁸ Department of Pediatrics, Juliana Children's Hospital, Hagaziekenhuis, Den Haag, the Netherlands.
⁹ Department of Pediatric Hematology and Oncology, Erasmus MC Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands.

Free article

Caroline Vuong et al. Am J Hematol. 2024 Aug.

Free article

. 2024 Aug;99(8):1606-1609.

doi: 10.1002/ajh.27351. Epub 2024 Apr 29.

¹ Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
² Center for Benign Hematology, Thrombosis and Hemostasis-Van Creveldkliniek, Wilhelmina Children's Hospital, University Medical Center Utrecht, Utrecht, the Netherlands.
³ Department of Epidemiology and Data Science, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
⁴ Department of Pediatric Hematology, Amalia Children's Hospital, Radboud University Nijmegen Medical Center, Nijmegen, the Netherlands.
⁵ Department of Pediatric Hematology, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, the Netherlands.
⁶ Department of Pediatric Hematology and Stem Cell Transplantation Unit, Willem-Alexander Children's Hospital, Leiden University Medical Center, Leiden, the Netherlands.
⁷ Department of Pediatric Hematology, Mosakids Children's Hospital, Maastricht UMC+, Maastricht, the Netherlands.
⁸ Department of Pediatrics, Juliana Children's Hospital, Hagaziekenhuis, Den Haag, the Netherlands.
⁹ Department of Pediatric Hematology and Oncology, Erasmus MC Sophia Children's Hospital, University Medical Center Rotterdam, Rotterdam, the Netherlands.

No abstract available

References

1. Kato GJ, Piel FB, Reid CD, et al. Sickle cell disease. Nat Rev Dis Primers. 2018;4:18010.
1. Deaths; underlying cause of death (shortlist), sex, age. 11 December 2023 ed. The Hague/Heerlen: Central Bureau of Statistics (CBS). 2023.
1. van der Plas EM, van den Tweel XW, Geskus RB, et al. Mortality and causes of death in children with sickle cell disease in The Netherlands, before the introduction of neonatal screening. Br J Haematol. 2011;155(1):106‐110.
1. Runkel B, Klüppelholz B, Rummer A, et al. Screening for sickle cell disease in newborns: a systematic review. Syst Rev. 2020;9(1):250.
1. Quinn CT, Rogers ZR, McCavit TL, Buchanan GR. Improved survival of children and adolescents with sickle cell disease. Blood. 2010;115(17):3447‐3452.