Perceptions of Health Misinformation on Social Media: Cross-Sectional Survey Study
- PMID: 38687591
- PMCID: PMC11094599
- DOI: 10.2196/51127
Perceptions of Health Misinformation on Social Media: Cross-Sectional Survey Study
Abstract
Background: Health misinformation on social media can negatively affect knowledge, attitudes, and behaviors, undermining clinical care and public health efforts. Therefore, it is vital to better understand the public's experience with health misinformation on social media.
Objective: The goal of this analysis was to examine perceptions of the social media information environment and identify associations between health misinformation perceptions and health communication behaviors among US adults.
Methods: Analyses used data from the 2022 Health Information National Trends Survey (N=6252). Weighted unadjusted proportions described respondents' perceptions of the amount of false or misleading health information on social media ("perceived misinformation amount") and how difficult it is to discern true from false information on social media ("perceived discernment difficulty"). Weighted multivariable logistic regressions examined (1) associations of sociodemographic characteristics and subjective literacy measures with misinformation perceptions and (2) relationships between misinformation perceptions and health communication behaviors (ie, sharing personal or general health information on social media and using social media information in health decisions or in discussions with health care providers).
Results: Over one-third of social media users (35.61%) perceived high levels of health misinformation, and approximately two-thirds (66.56%) reported high perceived discernment difficulty. Odds of perceiving high amounts of misinformation were lower among non-Hispanic Black/African American (adjusted odds ratio [aOR] 0.407, 95% CI 0.282-0.587) and Hispanic (aOR 0.610, 95% CI 0.449-0.831) individuals compared to White individuals. Those with lower subjective health literacy were less likely to report high perceived misinformation amount (aOR 0.602, 95% CI 0.374-0.970), whereas those with lower subjective digital literacy were more likely to report high perceived misinformation amount (aOR 1.775, 95% CI 1.400-2.251). Compared to White individuals, Hispanic individuals had lower odds of reporting high discernment difficulty (aOR 0.620, 95% CI 0.462-0.831). Those with lower subjective digital literacy (aOR 1.873, 95% CI 1.478-2.374) or numeracy (aOR 1.465, 95% CI 1.047-2.049) were more likely to report high discernment difficulty. High perceived misinformation amount was associated with lower odds of sharing general health information on social media (aOR 0.742, 95% CI 0.568-0.968), using social media information to make health decisions (aOR 0.273, 95% CI 0.156-0.479), and using social media information in discussions with health care providers (aOR 0.460, 95% CI 0.323-0.655). High perceived discernment difficulty was associated with higher odds of using social media information in health decisions (aOR 1.724, 95% CI 1.208-2.460) and health care provider discussions (aOR 1.389, 95% CI 1.035-1.864).
Conclusions: Perceptions of high health misinformation prevalence and discernment difficulty are widespread among social media users, and each has unique associations with sociodemographic characteristics, literacy, and health communication behaviors. These insights can help inform future health communication interventions.
Keywords: health communication; health literacy; misinformation; patient-provider communication; social media.
©Anna Gaysynsky, Nicole Senft Everson, Kathryn Heley, Wen-Ying Sylvia Chou. Originally published in JMIR Infodemiology (https://infodemiology.jmir.org), 30.04.2024.
Conflict of interest statement
Conflicts of Interest: None declared.
Figures
Similar articles
-
Engagement With and Use of Health Information on Social Media Among US Latino Individuals: National Cross-Sectional Survey Study.J Med Internet Res. 2025 Feb 24;27:e59387. doi: 10.2196/59387. J Med Internet Res. 2025. PMID: 39993286 Free PMC article.
-
Racial and Demographic Disparities in Susceptibility to Health Misinformation on Social Media: National Survey-Based Analysis.J Med Internet Res. 2024 Nov 6;26:e55086. doi: 10.2196/55086. J Med Internet Res. 2024. PMID: 39504121 Free PMC article.
-
Perceived Patient-Provider Communication Quality and Sociodemographic Factors Associated With Watching Health-Related Videos on YouTube: A Cross-Sectional Analysis.J Med Internet Res. 2019 May 17;21(5):e13512. doi: 10.2196/13512. J Med Internet Res. 2019. PMID: 31102372 Free PMC article.
-
[Mis- and disinformation in social media: mitigating risks in digital health communication].Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2024 Mar;67(3):300-307. doi: 10.1007/s00103-024-03836-2. Epub 2024 Feb 8. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2024. PMID: 38332143 Free PMC article. Review. German.
-
Cancer misinformation on social media.CA Cancer J Clin. 2024 Sep-Oct;74(5):453-464. doi: 10.3322/caac.21857. Epub 2024 Jun 19. CA Cancer J Clin. 2024. PMID: 38896503 Free PMC article. Review.
Cited by
-
Navigating the Maze of Social Media Disinformation on Psychiatric Illness and Charting Paths to Reliable Information for Mental Health Professionals: Observational Study of TikTok Videos.J Med Internet Res. 2025 Jun 18;27:e64225. doi: 10.2196/64225. J Med Internet Res. 2025. PMID: 40532184 Free PMC article.
-
Alternative Health and Conventional Medicine Discourse About Cancer on TikTok: Computer Vision Analysis of TikTok Videos.J Med Internet Res. 2024 Dec 9;26:e60283. doi: 10.2196/60283. J Med Internet Res. 2024. PMID: 39652864 Free PMC article.
-
Exploring perceptions of health literacy, healthcare access, and utilisation among higher education students in Alentejo, Southern Portugal: A qualitative study.PLoS One. 2025 Jun 27;20(6):e0326575. doi: 10.1371/journal.pone.0326575. eCollection 2025. PLoS One. 2025. PMID: 40577325 Free PMC article.
-
Mis- and disinformation and perceptions of healthcare policy among Latinos in the USA: protocol for a multi-method social media sentiment analysis study.BMJ Open. 2025 Jul 3;15(7):e096465. doi: 10.1136/bmjopen-2024-096465. BMJ Open. 2025. PMID: 40615146 Free PMC article.
References
-
- Auxier B, Anderson M. Social media use in 2021. Pew Research Center. 2021. Apr 07, [2023-12-15]. https://www.pewresearch.org/internet/2021/04/07/social-media-use-in-2021/
-
- Chen J, Wang Y. Social media use for health purposes: systematic review. J Med Internet Res. 2021 May 12;23(5):e17917. doi: 10.2196/17917. https://www.jmir.org/2021/5/e17917/ v23i5e17917 - DOI - PMC - PubMed
-
- Zhao Y, Zhang J. Consumer health information seeking in social media: a literature review. Health Info Libr J. 2017 Dec;34(4):268–83. doi: 10.1111/hir.12192. https://onlinelibrary.wiley.com/doi/10.1111/hir.12192 - DOI - DOI - PubMed
MeSH terms
LinkOut - more resources
Full Text Sources