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. 2024 May 14;32(6):346.
doi: 10.1007/s00520-024-08553-9.

Reasons for non-participation in cancer rehabilitation: a scoping literature review

Mikala Erlik  1   2 , Helle Timm  3   4   5 , Anders Thyge Steen Larsen  3 , Morten Quist  3   6
Affiliations

Reasons for non-participation in cancer rehabilitation: a scoping literature review

Mikala Erlik et al. Support Care Cancer. .

Abstract

Background: Rehabilitation plays an important role in addressing the many challenges of living with cancer, but a large proportion of people with cancer do not participate in available cancer rehabilitation. Hence, reasons for non-participation in cancer rehabilitation need to be explored.

Objective: The present study undertakes a scoping review of research examining reasons for non-participation in cancer rehabilitation among people with cancer.

Design: A systematic search was conducted in PubMed, Scopus and CINAHL for articles published until July 2023. Included studies were hand searched for relevant references and citations.

Eligibility criteria: Method: Studies with qualitative, quantitative or mixed-method design.

Population: Studies targeting adults (> 18) living with cancer, not participating in rehabilitation. Program type: The review included all studies defining program as rehabilitation but excluded clinical trials.

Outcome: Studies examining reasons for non-participation in available rehabilitation.

Data extraction: The extracted data included author(s)/year of publication, aim, population, information, rehabilitation type and main reasons for non-participation.

Results: A total of nine studies were included (n = 3 quantitative, n = 2 qualitative, n = 4 mixed methods). Reasons for non-participation included physical, psychosocial and practical aspects. The main reason across studies was 'no need for public support' related to receiving sufficient support from family and friends. All studies focused on individual reasons, and structural conditions were rarely present.

Conclusion: Research within this field is sparse. Future research should explore how individual reasons for non-participation relate to structural conditions, especially among people in socially disadvantaged positions living with cancer.

Keywords: Health inequities; Patient acceptance of health care; Patient participation; Refusal to participate; Rehabilitation; Social support.

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Conflict of interest statement

The authors declare no competing interests.

Figures

Fig. 1
Fig. 1
Selection of studies included in the scope
See this image and copyright information in PMC

References

    1. World Cancer Research Fund International. Worldwide cancer data | World Cancer Research Fund International [Internet]. WCRF International. Available from: https://www.wcrf.org/cancer-trends/worldwide-cancer-data/. Accessed 20 Mar 2024
    1. Sandager M (ed) (2011) Kræftpatienters oplevelser med sundhedsvæsenet gennem udredning og behandling: kræftens Bekæmpelses barometerundersøgelse. Version 1.1.1.o, kbh: kræftens Bekæmpelse. Available from: http://www.cancer.dk/NR/rdonlyres/E0FD2703-0026-4EBA-BB26-BA1E2999EFF0/0.... Accessed 20 Mar 2024
    1. Mikkelsen T, Sondergaard J, Sokolowski I, Jensen A, Olesen F. Cancer survivors’ rehabilitation needs in a primary health care context. Fam Pract. 2009;26(3):221–230. doi: 10.1093/fampra/cmp004. - DOI - PubMed
    1. NuruMuhamed A, Kerie S, Biresaw H, Zewdie A, Habtie A, Kassa A. Lived experiences of adult cancer patients undergoing chemotherapy treatment at University of Gondar Specialized Hospital, North West Ethiopia, 2021. J Patient Exp. 2023;10:23743735231166496–23743735231166496. - PMC - PubMed
    1. Crowder SL, Sauls R, Gudenkauf LM, James C, Skinner A, Reed DR, et al. The lived experience of young adult cancer survivors after treatment: a qualitative study. Nutrients. 2023;15(14):3145. doi: 10.3390/nu15143145. - DOI - PMC - PubMed

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