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Review
. 2024 Nov;31(11):e16343.
doi: 10.1111/ene.16343. Epub 2024 May 23.

Two decades of patient advocacy

Mary Baker  1 , Audrey Craven  1 , Orla Galvin  1 , Tadeusz Hawrot  1 , Alistair Newton  1 , Eveline Sipido  1 , Donna Walsh  1 , Joke Jaarsma  1
Affiliations
Review

Two decades of patient advocacy

Mary Baker et al. Eur J Neurol. 2024 Nov.

Abstract

The European Federation of Neurological Associations (EFNA) brings together European umbrella organizations of pan-European neurological patient advocacy groups (www.efna.net) and strives to improve the quality of life of people living with neurological conditions and to work towards relieving the immense social and economic burden on patients, carers and society in general. This article provides an overview of EFNA's activities and achievements over the past two decades, the evolution of patient advocacy during those years, and the increased role and impact of the European patient voice in the neurological arena.

Keywords: European patients; patient advocacy; patient policy; the patient voice.

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Conflict of interest statement

None of the authors have declared a conflict of interest.

Figures

FIGURE 1
FIGURE 1
European Federation of Neurological Associations (EFNA) membership 2024.
See this image and copyright information in PMC

References

    1. Eur J Neurol. 2024 Nov;31(11):e16343 - PubMed

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