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. 2024 Nov;25(7-8):795-796.
doi: 10.1080/21678421.2024.2362850. Epub 2024 Jun 3.

International network for ALS research and care (INARC)

Juliette Foucher  1   2   3 , Tommy M Bunte  3   4 , Vanessa Bertone  3   5 , Romy L Verschoor  3   6 , Mathias Couillard  3   7   8 , Corey Straub  3   7 , Angela Genge  7   8   9 , Caroline Ingre  1   2 , Leonard H van den Berg  4   6
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Free article

International network for ALS research and care (INARC)

Juliette Foucher et al. Amyotroph Lateral Scler Frontotemporal Degener. 2024 Nov.
Free article

Abstract

The International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC) was founded in 2022. INARC's main goals are to offer a platform dedicated to staff members for ALS clinics and research teams who are not physicians. By nurturing experience and expertise exchanges to improve problem solving skills, the ultimate goal is to increase the standard ALS care and research. This brief report aims to describe the formation of INARC, the 2023 INARC meeting, as well as to report topics discussed, lessons learned and challenges raised by INARC members.

Keywords: Amyotrophic lateral sclerosis; cooperation; international; network; report.

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