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. 2024 Jun 3;24(1):702.
doi: 10.1186/s12913-024-11150-5.

"Let's put it this way: you can't really live without it" - digital technologies in routine palliative care delivery: an explorative qualitative study with patients and their family caregivers in Germany

Susann May  1 , Anne Gehlhaar  1 , Kerstin Stahlhut  2 , Marcel-Alexander Kamp  2 , Martin Heinze  1   3 , Matthew Allsop  4 , Felix Muehlensiepen  5   6
Affiliations

"Let's put it this way: you can't really live without it" - digital technologies in routine palliative care delivery: an explorative qualitative study with patients and their family caregivers in Germany

Susann May et al. BMC Health Serv Res. .

Abstract

Background: Despite ongoing efforts to integrate palliative care into the German healthcare system, challenges persist, particularly in areas where infrastructure does not fully support digital technologies (DT). The increasing importance of digital technology (DT) in palliative care delivery presents both opportunities and challenges.

Objective: This study aimed to explore the perspectives and preferences of palliative care patients and their family caregivers regarding the use of DT in care delivery.

Methods: An exploratory qualitative study was conducted using semi-structured interviews with palliative care patients and their family caregivers across various settings. Participants were selected through gatekeeper-supported purposive sampling. Interviews were analysed using structured qualitative content analysis.

Results: Nineteen interviews were conducted.Three themes emerged: (1) Application of DTs in palliative care; (2) Potential of DTs; (3) Barriers to the use of DTs. Key findings highlighted the preference for real-time communication using DTs that participants are familiar with. Participants reported limited perceived value for digital transformation in the presence of in-person care. The study identified requirements for DT development and use in palliative care, including the need for direct and immediate functionality, efficiency in healthcare professional (HCP) work, and continuous access to services.

Conclusion: The findings highlight a demonstrate the importance of familiarity with DTs and real-time access for patients and their families. While DT can enhance palliative care efficiency and accessibility, its integration must complement, not replace, in-person interaction in palliative care. As DTs continue to grow in scope and use in palliative care, maintaining continued user engagement is essential to optimise their adoption and ensure they benefit patients and their caregivers.

Keywords: Digital Health; Health Services Research; Palliative care; Qualitative research; Telemedicine; User perspectives.

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Conflict of interest statement

The authors declare no competing interests.

Figures

Fig. 1
Fig. 1
Systematic use of digital technologies in its situational context
Fig. 2
Fig. 2
Areas of application of digital technologies from the perspective of patients and their family caregivers
See this image and copyright information in PMC

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