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. 2024 May:2024:139.
doi: 10.1145/3613904.3642612. Epub 2024 May 11.

"Obviously, Nothing's Gonna Happen in Five Minutes": How Adolescents and Young Adults Infrastructure Resources to Learn Type 1 Diabetes Management

Tian Xu  1 , Emily Jost  2 , Laurel H Messer  2 , Paul F Cook  2 , Gregory P Forlenza  2 , Sriram Sankaranarayanan  3 , Casey Fiesler  1 , Stephen Voida  1
Affiliations

"Obviously, Nothing's Gonna Happen in Five Minutes": How Adolescents and Young Adults Infrastructure Resources to Learn Type 1 Diabetes Management

Tian Xu et al. Proc SIGCHI Conf Hum Factor Comput Syst. 2024 May.

Abstract

Learning personalized self-management routines is pivotal for people with type 1 diabetes (T1D), particularly early in diagnosis. Context-aware technologies, such as hybrid closed-loop (HCL) insulin pumps, are important tools for diabetes self-management. However, clinicians have observed that practices using these technologies involve significant individual differences. We conducted interviews with 20 adolescents and young adults who use HCL insulin pump systems for managing T1D, and we found that these individuals leverage both technological and non-technological means to maintain situational awareness about their condition. We discuss how these practices serve to infrastructure their self-management routines, including medical treatment, diet, and glucose measurement-monitoring routines. Our study provides insights into adolescents' and young adults' lived experiences of using HCL systems and related technology to manage diabetes, and contributes to a more nuanced understanding of how the HCI community can support the contextualized management of diabetes through technology design.

Keywords: context-aware health technology; diabetes management; hybrid-closed loop systems; infrastructuring health practice.

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Figures

Figure 1:
Figure 1:
The image shows how an individual usually wears a HCL system (i.e., a CGM along with an insulin pump with an algorithm). The CGM senses glucose levels and sends data to the insulin pump via Bluetooth. The insulin pump shows glucose numbers and predicted trends and delivers insulin to the body. The algorithm embedded in the insulin pump predicts glucose levels and adjusts insulin delivery accordingly.
Figure 2:
Figure 2:
A diagram of how participants infrastructure various resources in support of key T1D self-management routines
See this image and copyright information in PMC

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