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. 2024 Jun 13;22(1):243.
doi: 10.1186/s12916-024-03465-1.

"The dream is that there's one place you go": a qualitative study of women's experiences seeking care from Long COVID clinics in the USA

Linnea I Laestadius  1 , Jeanine P D Guidry  2 , Megan M Wahl  3 , Paul B Perrin  4 , Kellie E Carlyle  5 , Xiaobei Dong  3 , Raouf Gharbo  6 , Celeste Campos-Castillo  7
Affiliations

"The dream is that there's one place you go": a qualitative study of women's experiences seeking care from Long COVID clinics in the USA

Linnea I Laestadius et al. BMC Med. .

Erratum in

Abstract

Background: Seeking and obtaining effective health care for Long COVID remains a challenge in the USA. Women have particularly been impacted, as they are both at higher risk of developing Long COVID and of facing gendered barriers to having symptoms acknowledged. Long COVID clinics, which provide multidisciplinary and coordinated care, have emerged as a potential solution. To date, however, there has been little examination of U.S. patient experiences with Long COVID clinics and how patients may or may not have come to access care at a Long COVID clinic.

Methods: We conducted semi-structured interviews with 30 U.S. women aged 18 or older who had experienced Long COVID symptoms for at least 3 months, who had not been hospitalized for acute COVID-19, and who had seen at least one medical provider about their symptoms. Participants were asked about experiences seeking medical care for Long COVID. Long COVID clinic-related responses were analyzed using qualitative framework analysis to identify key themes in experiences with Long COVID clinics.

Results: Of the 30 women, 43.3% (n = 13) had been seen at a Long COVID clinic or by a provider affiliated with a Long COVID clinic and 30.0% (n = 9) had explored or attempted to see a Long COVID clinic but had not been seen at time of interview. Participants expressed five key themes concerning their experiences with seeking care from Long COVID clinics: (1) Access to clinics remains an issue, (2) Clinics are not a one stop shop, (3) Not all clinic providers have sufficient Long COVID knowledge, (4) Clinics can offer validation and care, and (5) Treatment options are critical and urgent.

Conclusions: While the potential for Long COVID clinics is significant, findings indicate that ongoing barriers to care and challenges related to quality and coordination of care hamper that potential and contribute to distress among women seeking Long COVID care. Since Long COVID clinics are uniquely positioned and framed as being the place to go to manage complex symptoms, it is critical to patient wellbeing that they be properly resourced to provide a level of care that complies with emerging best practices.

Keywords: Access to care; Long COVID; Post COVID; Qualitative; Quality of care; Women.

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Conflict of interest statement

The authors declare that they have no competing interests.

Figures

Fig. 1
Fig. 1
Long COVID clinic care themes and quotes
See this image and copyright information in PMC

References

    1. CDC. Post-COVID Conditions Information for Healthcare Providers. 2023. https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/post-covid-c.... Accessed 3 Feb 2024.
    1. Nittas V, Gao M, West EA, Ballouz T, Menges D, Hanson SW, et al. Long COVID Through a Public Health Lens: An Umbrella Review. Public Heal Rev. 2022;43:1604501. 10.3389/phrs.2022.1604501. 10.3389/phrs.2022.1604501 - DOI - PMC - PubMed
    1. Chen C, Haupert SR, Zimmermann L, Shi X, Fritsche LG, Mukherjee B. Global Prevalence of Post COVID-19 Condition or Long COVID: A Meta-Analysis and Systematic Review. J Infect Dis. 2022;226(9):1593–607. 10.1093/infdis/jiac136. 10.1093/infdis/jiac136 - DOI - PMC - PubMed
    1. Perlis RH, Santillana M, Ognyanova K, Safarpour A, Trujillo KL, Simonson MD, et al. Prevalence and Correlates of Long COVID Symptoms Among US Adults. JAMA Netw Open. 2022;5:e2238804. 10.1001/jamanetworkopen.2022.38804. 10.1001/jamanetworkopen.2022.38804 - DOI - PMC - PubMed
    1. Ford ND, Slaughter D, Edwards D, Dalton A, Perrine C, Vahratian A, et al. Long COVID and Significant Activity Limitation Among Adults, by Age — United States, June 1–13, 2022, to June 7–19, 2023. Morb Mortal Wkly Rep. 2023;72:866–70. 10.15585/mmwr.mm7232a3. 10.15585/mmwr.mm7232a3 - DOI - PMC - PubMed

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