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. 2024 Sep;33(9):2401-2416.
doi: 10.1007/s11136-024-03702-3. Epub 2024 Jun 14.

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7-11 year-old children

S Ishaque  1   2 , R M Roberts  3 , J Karnon  4 , D Thomas  5 , A B Salter  6
Affiliations

Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7-11 year-old children

S Ishaque et al. Qual Life Res. 2024 Sep.

Abstract

Background: The Measure Yourself Medical Outcome Profile (MYMOP) is an individualised tool designed for adults but used with children without any evidence of validation in this population. Individualised instruments are patient-specific rather than disease-specific and therefore can be applied across various health conditions. This study sought to adapt, and content validate the MYMOP for application in 7-11 year old children.

Methods: There were two main phases of the four iterations: expert consultation (three rounds) and interviews with child-parent pairs at the Outpatient clinics of a Children's Hospital. Thematic analysis was undertaken using an inductive, interpretative approach.

Results: Four paediatricians completed the first survey, five paediatricians participated in the focus group, and four paediatric health-related quality of life (HRQOL) research experts completed the second survey. Several changes were recommended to the MYMOP by the expert groups. Twenty-five children (17 general medicine, and 8 diabetes/endocrine clinic) aged 7-11 years completed the draft paediatric MYMOP (P-MYMOP) and were interviewed. Results demonstrated that the majority of participants were able to identify their own problems and activity limitations, and all participants understood the 7-point faces scale. Most parents and children perceived that the P-MYMOP would be useful to complete before clinic appointments.

Conclusions: The P-MYMOP is the first content-validated generic individualised HRQOL measure for children 7-11 years old. Given that validation is an iterative process, further research to assess its feasibility, reliability, and construct validity is required.

Keywords: Health related quality of life; Individualised; MYMOP; Paediatric MYMOP; Patient centred outcomes.

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Conflict of interest statement

All authors declare that there are no financial or other competing interests.

Figures

Fig. 1
Fig. 1
Iterations in the adaptation of the Paediatric MYMOP and their outcomes
Fig. 2
Fig. 2
The seven-point faces scale of the Paediatric MYMOP
See this image and copyright information in PMC

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