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Review
. 2024 Sep 20;29(4):443-455.
doi: 10.1093/jdsade/enae024.

Ethics of research engagement with Deaf people. A qualitative evidence synthesis

Tomasz Krawczyk  1   2 , Jan Piasecki  1 , Mateusz Wasylewski  1   2 , Marcin Waligora  1   2
Affiliations
Review

Ethics of research engagement with Deaf people. A qualitative evidence synthesis

Tomasz Krawczyk et al. J Deaf Stud Deaf Educ. .

Abstract

In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers which resulted in 27 eligible papers. We analyzed the data using thematic synthesis and developed 5 analytical themes. The results present research as a struggle for Deaf people and emphasize the need for changes regarding recognition of Deaf research in a cross-cultural context, maintaining equal and partner relations, and provision of accessible communication. Our research contributes to understanding what the ethical inclusion of Deaf people in research implies. It may also support the development of evidence-based normative recommendations and scientific cooperation between Deaf and hearing people.

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Conflict of interest statement

None declared.

Figures

Figure 1
Figure 1
The PRISMA flow diagram of the study selection process.
Figure 2
Figure 2
Hierarchical structure of analytical and descriptive themes.
Figure 3
Figure 3
The occurrence of codes within included papers—the analytical theme Academia as a struggle. Numbers refer to the list of included papers as presented in Table 1.
Figure 4
Figure 4
The occurrence of codes within included papers—the analytical theme Equal relations and dialogue. Numbers refer to the list of included papers as presented in Table 1.
Figure 5
Figure 5
The occurrence of codes within included papers—the analytical theme Deaf research is cross-cultural. Numbers refer to the list of included papers as presented in Table 1.
Figure 6
Figure 6
The occurrence of codes within included papers—the analytical theme Communication. Numbers refer to the list of included papers as presented in Table 1.
Figure 7
Figure 7
The occurrence of codes within included papers—the analytical theme Need for systemic change. Numbers refer to the list of included papers as presented in Table 1.
See this image and copyright information in PMC

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