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. 2024 Jun;27(3):e14115.
doi: 10.1111/hex.14115.

Coproducing Health Information Materials With Young People: Reflections and Lessons Learned

Alice Faux-Nightingale  1 , Glenys Somayajula  1 , Charlotte Bradbury  1 , Lucy Bray  2 , Claire Burton  1 , Carolyn A Chew-Graham  1 , Aaliyah Gardner  3 , Alex Griffin  3 , Helen Twohig  1 , Victoria Welsh  1
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Coproducing Health Information Materials With Young People: Reflections and Lessons Learned

Alice Faux-Nightingale et al. Health Expect. 2024 Jun.

Abstract

Background: This paper describes and critically reflects on how children and young people (CYP) acted as public advisors to coproduce health information materials about Long Covid for younger audiences. This work was underpinned by the Lundy model, a framework which provides guidance on facilitating CYP to actively contribute to matters which affect them.

Methods: Coproduction activity sessions took place with CYP in schools as well as video conferences with a CYP stakeholder group and CYP with Long Covid. Activities encouraged CYP to focus on the content, format, and design of materials and used problem-based and collaborative learning to encourage engagement with the project. Using a range of methods and open discussion, CYP codesigned a series of Long Covid health information materials for younger audiences.

Results: Sixty-six CYP (aged 10-18), and two young adults were involved. CYP codesigned specifications for the final materials and provided feedback on early designs. The project led to the development of a series of health information materials targeted at CYP: a short social media campaign with six short videos and a 12-page illustrated leaflet about Long Covid; released on social media and distributed in local area. All the CYP were positive about the project and their involvement.

Discussion: Involving CYP led to the development of innovative and engaging information materials (influence). Developing rapport was important when working with CYP and this was facilitated by using approaches and activities to establish an environment (space) where the CYP felt comfortable sharing their views (voice) and being listened to (audience) by the adults in the project. Working with external groups who are willing to share their expertise can help the meaningful involvement of voices 'less heard'.

Public contribution: One CYP coapplicant contributed to the project design and facilitation of PPIE sessions, 64 CYP were involved in the PPIE sessions to design and feedback on materials. Two young adult media producers worked with CYP to produce these materials, another CYP supported this process. Three public contributors were involved in the preparation of this manuscript.

Keywords: Covid‐19; Long Covid; patient and public involvement and engagement (PPIE); young people.

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Conflict of interest statement

CC‐G is partly funded by WM ARC and has received other grants to investigate Long Covid. The other authors have no conflicts of interest to declare.

Figures

Figure 1
Figure 1
Photographs of CYP demonstrating some activities from the first PPIE session (reproduced with consent).
See this image and copyright information in PMC

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