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. 2022 Oct 1;32(4):484-490.
doi: 10.5737/23688076324484. eCollection 2022 Fall.

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Karine Bilodeau  1 , Benedicta Hartono  2 , Virginia Lee  3 , Nathalie Folch  4 , Danielle Charpentier  5 , Marie-France Vachon  6 , Marie-Pascale Pomey  7 , Serge Sultan  8 , Billy Vinette  9 , Ali El-Akhras  10
Affiliations

Improving community and healthcare services for young adults living with cancer: Suggestions from a multiple stakeholder workshop

Karine Bilodeau et al. Can Oncol Nurs J. .

Abstract

Background and objectives: Despite the availability of healthcare and community services dedicated to cancer survivors, these remain underutilized by young adults living with cancer (YAC; aged 18-39). A workshop was organized in Montréal, Canada, to identify the needs of YAC during their post-treatment transition period and explore existing services dedicated to YAC.

Methods: We recruited seventeen stakeholders (N = 17), including seven YAC, to participate in a one-day workshop to consult about best approaches and practices to meet the needs of YAC, post-treatment. All discussions were transcribed, and a thematic qualitative analysis was performed.

Results: Two main findings were identified: differences and similarities among stakeholders about perceptions of post-treatment needs; and suggestions to meet YAC needs following treatment.

Conclusions: Results demonstrate the importance of collaboration among multiple stakeholders, including YAC, when designing services for YAC. Results include suggestions to improve services available through community or healthcare centres.

Keywords: cancer; community engagement; healthcare services; patient engagement; survivorship; young adult.

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Conflict of interest statement

DECLARATIONS OF INTEREST None

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