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. 2024 Jul 1;34(Supplement_1):i29-i34.
doi: 10.1093/eurpub/ckad172.

European Health Information Portal: a one-stop shop for health information

Hanna Tolonen  1 , Miriam Saso  2 , Brigid Unim  3 , Luigi Palmieri  3 , Nienke Schutte  2 , Mariana Peyroteo  4 , Luís Velez Lapão  4 , Claudia Habl  5 , Petronille Bogaert  2 ; Population Health Information Research Infrastructure and the Health Information Portal
Collaborators, Affiliations

European Health Information Portal: a one-stop shop for health information

Hanna Tolonen et al. Eur J Public Health. .

Abstract

Background: Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.

Methods: Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information.

Results: The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section.

Conclusions: The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.

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Figures

Figure 1
Figure 1
Sections of the European Health Information Portal
Figure 2
Figure 2
Required components for the sustainability of the European Health Information Portal
See this image and copyright information in PMC

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