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. 2024 Jul 3;82(1):99.
doi: 10.1186/s13690-024-01315-3.

Prevalence, trends, and specialized palliative care utilization in Taiwanese children and young adults with life-limiting conditions between 2008 and 2017: a nationwide population-based study

Shih-Chun Lin  1   2   3 , Mei-Chih Huang  4   5
Affiliations

Prevalence, trends, and specialized palliative care utilization in Taiwanese children and young adults with life-limiting conditions between 2008 and 2017: a nationwide population-based study

Shih-Chun Lin et al. Arch Public Health. .

Abstract

Background: Previous studies have shown a growing need for pediatric palliative care, but there is a lack of knowledge in many countries concerning prevalence of service use among children and young adults with life-limiting conditions. This study aimed to estimate (1) the annual prevalence of children and young adults with a life-limiting condition, and (2) their specialized palliative care and other healthcare utilization.

Methods: Data from the Health and Welfare Data Science Center in Taiwan were used. All children and young adults aged 0-25 years recorded in inpatient or outpatient data, and infants aged < 1 year in death data with a life-limiting condition diagnostic code from 2008 to 2017 were recruited. Poisson regression was used to estimate the crude and adjusted relative risk of prevalence of life-limiting conditions with 95% confidence intervals, adjusted for age and sex, and to evaluate the trend in prevalence of each life-limiting diagnostic groups, in specialized palliative care and other service use.

Results: Data contained 236,250 individuals with a life-limiting condition, of which oncological and congenital abnormalities were the most common. There was an annualized increase over 10 years in the prevalence of life-limiting conditions of 36.4%, from 45,311 cases (59.4 per 10,000 population) to 52,226 cases (81.0 per 10,000 population), with the highest prevalence in individuals aged 21-25 years. All diagnostic groups showed significant increases in prevalence (p < .001) with the exception of oncology, circulatory, and "other" group. Specialized palliative care services, including family consultation, shared care, home visits have increased in use over time (p < .001), while inpatient hospice has slightly decreased. The highest prevalence of healthcare use was for traditional Chinese medicine (237.1 per 1,000 population in 2017), but this decreased over time (p < .001).

Conclusions: Due to a growing trend towards multidisciplinary care, healthcare professionals and policymakers must engage and take action to expand specialized palliative care and integrate delivery of other healthcare services. Traditional Chinese medicine having a decreasing slope, yet still the highest prevalence of use, needs further attention.

Keywords: Health care utilization; Life-limiting condition; Palliative care; Pediatrics; Young adult.

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Conflict of interest statement

The authors declared that they have no competing interests.

Figures

Fig. 1
Fig. 1
Flow diagram of inclusion criteria
Fig. 2
Fig. 2
Prevalence of life-limiting conditions in children and young adults in Taiwan for 2008-2017 by diagnostic group
Fig. 3
Fig. 3
Rate of children and young adults with life-limiting conditions receiving specialized palliative care in Taiwan for 2008-2017
Fig. 4
Fig. 4
Rate of children and young adults with life-limiting conditions receiving other healthcare services in Taiwan for 2008-2017
See this image and copyright information in PMC

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References

    1. Fraser LK, Gibson-Smith D, Jarvis S, Norman P, Parslow RC. Estimating the current and future prevalence of life-limiting conditions in children in England. Palliat Med. 2021;35(9):1641–51. doi: 10.1177/0269216320975308. - DOI - PMC - PubMed
    1. Jarvis S, Parslow RC, Carragher P, Beresford B, Fraser LK. How many children and young people with life-limiting conditions are clinically unstable? A national data linkage study. Arch Dis Child. 2017;102(2):131–8. doi: 10.1136/archdischild-2016-310800. - DOI - PubMed
    1. Kim CH, Song IG, Kim MS, Lee JY, Lim NG, Shin HY. Healthcare utilization among children and young people with life-limiting conditions: exploring palliative care needs using National Health Insurance claims data. Sci Rep. 2020;10(1):2692. doi: 10.1038/s41598-020-59499-x. - DOI - PMC - PubMed
    1. Bowers AP, Chan RJ, Herbert A, Yates P. Estimating the prevalence of life-limiting conditions in Queensland for children and young people aged 0–21 years using health administration data. Aust Health Rev. 2020;44(4):630–6. doi: 10.1071/AH19170. - DOI - PubMed
    1. World Health Organization. Integrating palliative care and symptom relief into primary health care: a WHO guide for planners, implementers and managers. World Health Organization. 2018. apps.who.int/iris/bitstream/handle/10665/274559/9789241514477-eng.pdf

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