Standardized translations of the Lee Chronic GvHD Symptom Scale to 12 European languages: an EU COST Action cGvHD Eurograft project

Lars Klingen Gjærde¹, Oscar Brück^{2

3}, Nico Gagelmann⁴, Eleni Gavriilaki⁵, Marit Inngjerdingen⁶, Mikko Keranen⁷, Annika Kisch^{8

9}, Anders Eivind Myhre¹⁰, Attilio Olivieri^{11

12}, Jose Antonio Perez-Simon¹³, Dijana Perovic¹⁴, Vladimir Perovic¹⁵, Agnieszka Piekarska¹⁶, Drazen Pulanic^{17

18}, Kristin Rathje⁴, Sebastian Van Veen⁸, Guillaume Dachy¹⁹, Ivan Moiseev²⁰, Olaf Penack²¹, Zinaida Peric²², Hildegard Greinix²³, Stephanie J Lee²⁴, Daniel Wolff²⁵, Hélène Schoemans^{26

27}

Affiliations

¹ Department of Hematology, Rigshospitalet, Copenhagen, Denmark. lars.klingen.gjaerde@regionh.dk.
² Hematoscope Lab, Comprehensive Cancer Center & Center of Diagnostics, Helsinki University Hospital, Helsinki, Finland.
³ Department of Oncology, University of Helsinki, Helsinki, Finland.
⁴ Department of Stem Cell Transplantation, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
⁵ 2nd Propedeutic Department of Internal Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece.
⁶ Department of Pharmacology, Oslo University Hospital, Oslo, Norway.
⁷ Department of Hematology, Helsinki University Hospital Comprehensive Cancer Center, Helsinki, Finland.
⁸ Department of Hematology, Oncology and Radiation Physics, Skane University Hospital, Lund, Sweden.
⁹ Department of Health Sciences, Lund University, Lund, Sweden.
¹⁰ Department of Hematology, Oslo University Hospital, Oslo, Norway.
¹¹ Department of Clinical and Molecular Sciences (DISCLIMO), Università Politecnica delle Marche, Ancona, Italy.
¹² Department of Hematology, Ospedali Riuniti di Ancona, Ancona, Italy.
¹³ Department of Hematology, University Hospital Virgen del Rocio, Instituto de Biomedicina de Sevilla (IBIS), CSIC, Universidad de Sevilla, Sevilla, Spain.
¹⁴ Institute of Human Genetics, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
¹⁵ Institute for Microbiology and Immunology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
¹⁶ Department of Hematology and Transplantology, University Clinical Center, Medical University of Gdańsk, Gdańsk, Poland.
¹⁷ Division of Hematology, Department of Internal Medicine, University Hospital Centre Zagreb, Zagreb, Croatia.
¹⁸ University of Zagreb School of Medicine, Zagreb, Croatia.
¹⁹ Service d'Hématologie, Institut Roi Albert II, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
²⁰ RM Gorbacheva Research Institute, Pavlov University, St. Petersburg, Russian Federation.
²¹ Department for Haematology, Oncology and Tumorimmunology, Charité Universitätsmedizin Berlin, Berlin, Germany.
²² Department of Hematology, University Hospital Centre Rijeka, Rijeka, Croatia.
²³ Division of Hematology, Medical University Graz, Graz, Austria.
²⁴ Fred Hutchinson Cancer Center, Seattle, WA, USA.
²⁵ Department of Internal Medicine III, University Hospital Regensburg, Regensburg, Germany.
²⁶ Department of Hematology, University Hospitals Leuven, Leuven, Belgium.
²⁷ Department of Public Health and Primary Care, ACCENT VV, KU Leuven - University of Leuven, Leuven, Belgium.

PMID: 39020019
DOI: 10.1038/s41409-024-02374-4

Standardized translations of the Lee Chronic GvHD Symptom Scale to 12 European languages: an EU COST Action cGvHD Eurograft project

Lars Klingen Gjærde et al. Bone Marrow Transplant. 2024 Oct.

. 2024 Oct;59(10):1477-1479.

doi: 10.1038/s41409-024-02374-4. Epub 2024 Jul 17.

Authors

Affiliations

¹ Department of Hematology, Rigshospitalet, Copenhagen, Denmark. lars.klingen.gjaerde@regionh.dk.
² Hematoscope Lab, Comprehensive Cancer Center & Center of Diagnostics, Helsinki University Hospital, Helsinki, Finland.
³ Department of Oncology, University of Helsinki, Helsinki, Finland.
⁴ Department of Stem Cell Transplantation, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
⁵ 2nd Propedeutic Department of Internal Medicine, Aristotle University of Thessaloniki, Thessaloniki, Greece.
⁶ Department of Pharmacology, Oslo University Hospital, Oslo, Norway.
⁷ Department of Hematology, Helsinki University Hospital Comprehensive Cancer Center, Helsinki, Finland.
⁸ Department of Hematology, Oncology and Radiation Physics, Skane University Hospital, Lund, Sweden.
⁹ Department of Health Sciences, Lund University, Lund, Sweden.
¹⁰ Department of Hematology, Oslo University Hospital, Oslo, Norway.
¹¹ Department of Clinical and Molecular Sciences (DISCLIMO), Università Politecnica delle Marche, Ancona, Italy.
¹² Department of Hematology, Ospedali Riuniti di Ancona, Ancona, Italy.
¹³ Department of Hematology, University Hospital Virgen del Rocio, Instituto de Biomedicina de Sevilla (IBIS), CSIC, Universidad de Sevilla, Sevilla, Spain.
¹⁴ Institute of Human Genetics, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
¹⁵ Institute for Microbiology and Immunology, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
¹⁶ Department of Hematology and Transplantology, University Clinical Center, Medical University of Gdańsk, Gdańsk, Poland.
¹⁷ Division of Hematology, Department of Internal Medicine, University Hospital Centre Zagreb, Zagreb, Croatia.
¹⁸ University of Zagreb School of Medicine, Zagreb, Croatia.
¹⁹ Service d'Hématologie, Institut Roi Albert II, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
²⁰ RM Gorbacheva Research Institute, Pavlov University, St. Petersburg, Russian Federation.
²¹ Department for Haematology, Oncology and Tumorimmunology, Charité Universitätsmedizin Berlin, Berlin, Germany.
²² Department of Hematology, University Hospital Centre Rijeka, Rijeka, Croatia.
²³ Division of Hematology, Medical University Graz, Graz, Austria.
²⁴ Fred Hutchinson Cancer Center, Seattle, WA, USA.
²⁵ Department of Internal Medicine III, University Hospital Regensburg, Regensburg, Germany.
²⁶ Department of Hematology, University Hospitals Leuven, Leuven, Belgium.
²⁷ Department of Public Health and Primary Care, ACCENT VV, KU Leuven - University of Leuven, Leuven, Belgium.

PMID: 39020019
DOI: 10.1038/s41409-024-02374-4

No abstract available

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References

1. Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288:1775–9. https://doi.org/10.1001/jama.288.14.1775 - DOI - PubMed
1. Kilgour JM, Wali G, Gibbons E, Scherwath A, Barata Badiella A, Peniket A, et al. Systematic Review of Patient-Reported Outcome Measures in Graft-versus-Host Disease. Biol Blood Marrow Transpl. 2020;26:e113–27. https://doi.org/10.1016/j.bbmt.2020.01.022 . - DOI
1. Perovic V, Sabol I, Grce M, Inngjerdingen M, Pulanic D, Peric Z, et al. Practice patterns in chronic graft-versus-host disease patient management and patient reported outcome measures across the EBMT allogeneic transplantation network. Bone Marrow Transpl. 2022;57:1458–60. https://doi.org/10.1038/s41409-022-01733-3 . - DOI
1. Lee S, Cook EF, Soiffer R, Antin JH. Development and validation of a scale to measure symptoms of chronic graft-versus-host disease. Biol Blood Marrow Transpl. 2002;8:444–52. https://doi.org/10.1053/bbmt.2002.v8.pm12234170 - DOI
1. Merkel EC, Mitchell SA, Lee SJ. Content Validity of the Lee Chronic Graft-versus-Host Disease Symptom Scale as Assessed by Cognitive Interviews. Biol Blood Marrow Transpl. 2016;22:752–8. https://doi.org/10.1016/j.bbmt.2015.12.026 . - DOI

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Standardized translations of the Lee Chronic GvHD Symptom Scale to 12 European languages: an EU COST Action cGvHD Eurograft project

Affiliations

Standardized translations of the Lee Chronic GvHD Symptom Scale to 12 European languages: an EU COST Action cGvHD Eurograft project

Authors

Affiliations

References

Publication types

MeSH terms

LinkOut - more resources

Full Text Sources