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. 2024 Jul 22;24(1):784.
doi: 10.1186/s12909-024-05772-w.

Reducing the Gap in Knowledge and Expectations between Clinicians and People with Polycystic Ovary Syndrome or Adrenal Conditions: Simulation via Instant Messaging-Birmingham Advance: Patient and Public Involvement (SIMBA-PPI) Study

Eka Melson #  1   2 , Fatema Rezai #  3 , Carina Pan #  3 , Sung Yat Ng  3 , Tamzin Ogiliev  4 , Ella Blendis  3 , Haaziq Sheikh  3 , Harjeet Kaur  3 , Catherine Cooper  5   6 , Farah Abdelhameed  7 , Francesca Pang  3 , Shreya Bhatt  3 , Dania Shabbir  8 , Zahra Olateju  3 , Eloise Radcliffe  3 , Prashanthan Balendran  3 , Abby Radcliffe  3 , Gar Mun Lau  3 , Meri Davitadze  9   10 , Dengyi Zhou  3   11 , Kashish Malhotra  10   12 , Caroline Gillett  2 ; SIMBA and CoMICs team; Punith Kempegowda  13   14
Affiliations

Reducing the Gap in Knowledge and Expectations between Clinicians and People with Polycystic Ovary Syndrome or Adrenal Conditions: Simulation via Instant Messaging-Birmingham Advance: Patient and Public Involvement (SIMBA-PPI) Study

Eka Melson et al. BMC Med Educ. .

Abstract

Background: To evaluate the efficacy of SIMBA as an educational intervention for both HCPs and people with either PCOS or adrenal conditions and to study the change in knowledge of people with PCOS or adrenal conditions about the conditions and expectations from the HCPs involved in their care following SIMBA-PPI sessions.

Methods: Two SIMBA-PPI sessions (SIMBA-PPI Polycystic ovary syndrome (SIMBA-PCOS) and SIMBA-PPI Adrenal conditions (SIMBA-Adrenal conditions)) were conducted in September 2021 and March 2022. In both sessions, HCPs interacted with moderators on patient management through WhatsApp. Patients with respective conditions underwent workshop-style learning in the same cases. SIMBA-PCOS transcripts were also translated into Brazilian Portuguese and workshops were held in both Brazilian Portuguese and English. The two groups (HCPs and patients) were then brought together to discuss exploring gaps in knowledge and expectations. The Wilcoxon Signed-Rank test compared differences in pre- and post-SIMBA self-reported confidence levels in HCPs and patients. Qualitative data from the online recordings were transcribed and analysed with inductive thematic analysis to identify gaps in knowledge and expectations from managing the cases.

Results: 48 HCPs and 25 patients participated in our study. When compared to pre-SIMBA confidence levels, SIMBA-PPI sessions effectively improved clinicians' confidence in managing PCOS (40.5%, p < .001) and adrenal conditions (23.0%, p < .001) post-SIMBA. Patient participants' confidence in HCPs significantly increased in the PCOS session (SIMBA-PCOS: 6.25%, p = 0.01).

Conclusions: Integration of PPI into SIMBA improved HCPs' confidence in managing PCOS and adrenal conditions. SIMBA-PPI also improved patients' confidence in HCPs. Our findings suggest that participating in SIMBA-PPI sessions can reduce the gap in knowledge and expectations between patients and HCPs involved in their care.

Keywords: Collaboration; Continuing professional development; Medical education; Patient and public involvement; SIMBA; Simulation-based learning.

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Conflict of interest statement

The authors declare no competing interests.

Figures

Fig. 1
Fig. 1
SIMBA-PCOS A) Illustration of changes in healthcare professionals’ confidence levels for managing simulated vs non-simulated cases. B Illustration of changes in confidence levels of women with PCOS for their confidence in HCPs to manage simulated vs non-simulated PCOS-related issues. C Illustration of changes in confidence levels of women with PCOS for their confidence in HCPs’ awareness of options available for managing simulated vs non-simulated PCOS-related issues
Fig. 2
Fig. 2
SIMBA-Adrenal conditions: An illustration of changes in healthcare professionals’ confidence levels for managing simulated vs non-simulated cases
Fig. 3
Fig. 3
HCP’s Self-reported increase in confidence across competencies post-SIMBA-PCOS and SIMBA-Adrenal conditions
See this image and copyright information in PMC

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