Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2024 Dec 1;31(12):2980-2984.
doi: 10.1093/jamia/ocae174.

Returning value to the community through the All of Us Research Program Data Sandbox model

Elizabeth Cohn  1 , Frida Esther Kleiman  2 , Shayaa Muhammad  1 , S Scott Jones  1 , Nakisa Pourkey  1 , Louise Bier  3
Affiliations

Returning value to the community through the All of Us Research Program Data Sandbox model

Elizabeth Cohn et al. J Am Med Inform Assoc. .

Abstract

Objective: The All of Us Research Program aims to return value to participants by developing research capacity in communities. We describe a novel set of introductory exercises (Data Sandboxes) and specialized trainings to orient researchers to the Researcher Workbench to foster health equity research.

Materials and methods: We developed a tailored training to familiarize researchers with the All of Us Research Program: (1) orientation, (2) tailored "data treasure hunt" using the Public Data Browser, and (3) overview of the analyses tools and platform.

Results: Participants' pre- and post-knowledge of the contents and structure of the All of Us dataset scores increased significantly after training. These trainings effectively engaged researchers in exploring this rich dataset.

Conclusion: We describe ways of orienting and familiarizing a wide variety of researchers with the All of Us Research Program dataset, sparking their interest, and "jump-starting" their research.

Keywords: community action; community involvement; community research; health equity; return of value.

PubMed Disclaimer

Conflict of interest statement

The authors have no conflicts of interest

Figures

Figure 1.
Figure 1.
Pre-Data Sandbox survey results.
Figure 2.
Figure 2.
Post-Data Sandbox survey results.
See this image and copyright information in PMC

References

    1. Gamache R, Kharrazi H, Weiner JP. Public and population health informatics: the bridging of big data to benefit communities. Yearb Med Inform. 2018; 27(1):199-206. 10.1055/s-0038-1667081 - DOI - PMC - PubMed
    1. Tamburis O, Benis A, Section Editors for the IMIA Yearbook Special Topic Section on Informatics for One Health. Leveraging data and technology to enhance interdisciplinary collaboration and health outcomes. Yearb Med Inform. 2023; 32(1):84-88. 10.1055/s-0043-1768753 - DOI - PMC - PubMed
    1. Venter JC, Adams MD, Myers EW, et al. The sequence of the human genome. Science. 2001;291(5507):1304-1351. - PubMed
    1. Edwards JL, Lane MA, Nielsen ES. Interoperability of biodiversity databases: biodiversity information on every desktop. Science. 2000;289(5488):2312-2314. - PubMed
    1. Borgman CL, Darch PT, Sands AE, et al. Knowledge infrastructures in science: data, diversity, and digital libraries. Int J Digit Libr. 2015;16(3-4):207-227.