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. 2024 Jul 16:12:1396003.
doi: 10.3389/fped.2024.1396003. eCollection 2024.

Creating a community advisory board for pediatric bladder health

Emily Teehan  1 , Ashley Phord-Toy  1 , Pranaya Venkatapuram  1 , Kathleen M Kan  1
Affiliations

Creating a community advisory board for pediatric bladder health

Emily Teehan et al. Front Pediatr. .

Erratum in

Abstract

Introduction: Pediatric lower urinary tract symptoms (LUTS) are highly prevalent in neurologically healthy school-aged children. However, no evidence-based programs exist to prevent or treat LUTS in the community setting. To address this, we established the first community advisory board (CAB) that aims to identify individual and societal structures impacting pediatric bladder health in Northern California's Bay Area and co-design culturally relevant bladder health interventions.

Methods: Probability and non-probability sampling methods were used to recruit community stakeholders to the CAB. Our final CAB comprised of two parents, two community health workers, one educator, one pediatric urology registered nurse, and one pediatrician. The CAB met quarterly during the 1-year study period.

Results: Bi-directional feedback identified community-level barriers to bladder health, particularly in the school environment, and the need for tailored resources to teach children and families about healthy bladder behaviors.

Discussion: The CAB co-designed school-based bladder health interventions, including bladder health posters, and provided feedback on three school-based research study proposals. The CAB will continue to guide and inform future community-engaged research efforts.

Keywords: community advisory board; community engagement; community health; lower urinary tract symptoms; pediatrics; urology.

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Conflict of interest statement

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Figures

Figure 1
Figure 1
CAB member identification and recruitment flowchart.
Figure 2
Figure 2
Subset of all results from adapted CTSA CAB implementation survey. These results reflect (A) CAB members' perceptions of their responsibilities, (B) methods used to evaluate the effectiveness of the CAB, (C) Kan Lab incorporation of their feedback, (D) the extent that CAB members are addressing the CAB's purpose and goals, and (E) the greatest challenges to the CAB. Questions presented in (A), (B), and (E) provided respondents with the option to “check all that apply”. All results are displayed as histograms with the y-axis indicating the frequency of CAB members who selected each answer option on the x-axis.
Figure 3
Figure 3
Co-design framework utilized to guide bi-directional feedback. Framework was adapted from Metro North Health (29).
See this image and copyright information in PMC

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