Long-term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis

Staci D Arnold¹, Nitya Bakshi¹, Diana Ross¹, Crystal Smith¹, Cynthia Sinha¹, Anirudh Veludhandi¹, Valerie Dutreuil², Shasha Bai², Lillian R Meacham¹, Greg Guilcher³, Monica Bhatia⁴, Allistair Abraham^{5

6}, Kimberly A Kasow⁷, Ann Haight¹, Fuad El Rassi⁸, Elizabeth Stenger¹, Joseph Lipscomb⁹, Lakshmanan Krishnamurti¹⁰

Affiliations

¹ Department of Pediatrics, Aflac Cancer and Blood Disorders Center at Children's Healthcare of Atlanta, Emory University, Atlanta, Georgia, USA.
² Pediatric Biostatistics Core, Department of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.
³ Alberta Children's Hospital, Calgary, Alberta, Canada.
⁴ Division of Pediatric Hematology, Oncology, and Stem Cell Transplantation, Columbia University Medical Center, New York, New York, USA.
⁵ Children's National Hospital, Washington, DC, USA.
⁶ Cellular and Molecular Therapeutics Branch, National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, Maryland, USA.
⁷ Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, North Carolina, USA.
⁸ Georgia Comprehensive Sickle Cell Center at Grady Health System, Emory University School of Medicine, Atlanta, Georgia, USA.
⁹ Emory University Rollins School of Public Health, Atlanta, Georgia, USA.
¹⁰ Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, New Haven, Connecticut, USA.

PMID: 39105410
DOI: 10.1002/ajh.27436

Long-term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis

Staci D Arnold et al. Am J Hematol. 2024 Oct.

. 2024 Oct;99(10):2037-2040.

doi: 10.1002/ajh.27436. Epub 2024 Aug 6.

Authors

Affiliations

¹ Department of Pediatrics, Aflac Cancer and Blood Disorders Center at Children's Healthcare of Atlanta, Emory University, Atlanta, Georgia, USA.
² Pediatric Biostatistics Core, Department of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.
³ Alberta Children's Hospital, Calgary, Alberta, Canada.
⁴ Division of Pediatric Hematology, Oncology, and Stem Cell Transplantation, Columbia University Medical Center, New York, New York, USA.
⁵ Children's National Hospital, Washington, DC, USA.
⁶ Cellular and Molecular Therapeutics Branch, National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, Maryland, USA.
⁷ Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, North Carolina, USA.
⁸ Georgia Comprehensive Sickle Cell Center at Grady Health System, Emory University School of Medicine, Atlanta, Georgia, USA.
⁹ Emory University Rollins School of Public Health, Atlanta, Georgia, USA.
¹⁰ Section of Pediatric Hematology/Oncology/BMT, Yale School of Medicine, New Haven, Connecticut, USA.

PMID: 39105410
DOI: 10.1002/ajh.27436

Abstract

We prospectively collected PROMIS©25 and PROMIS©29 surveys in the Sickle Cell Transplant Evaluation of Long Term and Late Effects Registry (STELLAR). Mobility and social participation T-scores were decreased; all other domains were within the norm.

PubMed Disclaimer

Publication types

Actions

MeSH terms

Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions
Actions

Grants and funding

LinkOut - more resources

Full Text Sources
- Ovid Technologies, Inc.
- Wiley

Save citation to file

Email citation

Add to Collections

Add to My Bibliography

Your saved search

Create a file for external citation management software

Your RSS Feed

Long-term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis

Affiliations

Long-term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis

Authors

Affiliations

Abstract

Publication types

MeSH terms

Grants and funding

LinkOut - more resources

Full Text Sources