Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Comment
. 2024 Aug;24(8):43-45.
doi: 10.1080/15265161.2024.2361880. Epub 2024 Aug 19.

Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing

Kirsten A Riggan  1 , Roel Feys  2 , Assata Kokayi  1 , Karen M Meagher  1 , Marsha Michie  3 , Kiran Musunuru  4 , Kelly E Ormond  5 , Andrea J Schelhaas  6 , Jane Q Yap  1 , Rosario Isasi  2 , Megan A Allyse  1
Affiliations
Comment

Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing

Kirsten A Riggan et al. Am J Bioeth. 2024 Aug.
No abstract available

PubMed Disclaimer

Comment on

References

    1. Allyse MA, Meagher KM, Michie M, Isasi R, Ormond KE, Bonhomme N, Bombard Y, Howard H, Musunuru K, Riggan KA, and Rubeck S. 2023. “Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together.” Am J Bioeth 23 (7): 55–58. - PMC - PubMed
    1. Boardman FK, and Clark CC. 2022. “What is a ‘Serious’ Genetic Condition? The Perceptions of People Living With Genetic Conditions.” Eur J Hum Genet 30 (2): 160–69. - PMC - PubMed
    1. Cheng L, Meiser B, Kirk E, Kennedy D, Barlow-Stewart K, and Kaur R. 2022. “Factors Influencing Patients’ Decision-Making About Preimplantation Genetic Testing for Monogenic Disorders.” Hum Reprod 37 (11): 2599–610. - PubMed
    1. Donnelley M, Parsons D, and Prichard I. 2023. “Perceptions of Airway Gene Therapy for Cystic Fibrosis.” Expert Opin Biol Ther 23 (1): 103–13. - PubMed
    1. Freeman L, Righetti S, Delatycki MB, Scully JL, and Kirk EP. 2022. “The Views of People With a Lived Experience of Deafness and the General Public Regarding Genetic Testing for Deafness in the Reproductive Setting: A Systematic Review.” Genet Med 24 (9): 1803–13. - PubMed

LinkOut - more resources