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. 2024 Aug 22:316:1960-1961.
doi: 10.3233/SHTI240817.

HL7 FHIR in Health Research: A FHIR Specification for Metadata in Clinical, Epidemiological, and Public Health Studies

Thimo Hölter  1 , Sophie Anne Inès Klopfenstein  1   2 , Paula Josephine Mayer  1 , Julian Sass  1 , Sylvia Thun  1 , Carina Nina Vorisek  1
Affiliations

HL7 FHIR in Health Research: A FHIR Specification for Metadata in Clinical, Epidemiological, and Public Health Studies

Thimo Hölter et al. Stud Health Technol Inform. .

Abstract

This work presents the Fast Healthcare Interoperability Resources (FHIR®) specification of the NFDI4Health Metadata schema based on FHIR Version 4: We created 16 profiles to facilitate the integration of clinical, epidemiological, and public health study data. Despite challenges arising from the extensive MDS as well as missing concepts in semantic standards, it marks a significant advance in applying information technology standards to health research.

Keywords: FAIR; FHIR; Health Research; Interoperability; Public health; Standards.

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